just back from cardiologist

[LISAANNE1983]

well i just thought id update u all in my progress. been see dr today she as the other dr thinks pots is\what i have however she now thinks i may also have some form epelepsy and is requesting i see a neurologisty. she hasnt given any treatment avice and now it be another mounth before i see her. aggghhh i so frustrated i really thought they give me something to help my symptoms a little. i tried increasing salt but i find takig fluids a challenge is there anything i can do myself. and by the way shee now got me hooked up to a 7 day holter monitor so i have fun sleeping with my allergy to the latex.... the joys.

[LISAANNE1983]

thanks for your commens . hope you are all keeping well

[molly0]

Geez, that's harsh.  I understand testing for epilepsy, but they shouldn't be denying you treatment for your POTS.  I'm not sure what to say, I take Florinef.  Hopefully your POTS is treatable like mine.  My daughter faints despite treatment with all kinds of medicine.

[halbashes]

I hope your doctor knows about the latex allergy, it's likely to worsen each time you are in contact with latex products.  You may want to try cortisone cream for the hives, and ask your doctors for hypoallergenic options to see if they will accommodate.

As for the Epilepsy, nearly everyone with Autonomic Dysfunction hears this listed as a possible diagnosis at one point or another.  It's just a part of the diagnostic process I guess.  I'm sorry to hear they aren't trying to treat your symptoms in the meantime though.  Have you thought about taking your Tilt Table results to another doctor?

Most seizures or seizure-like symptoms in Dysautonomia patients are caused by a lack of oxygenated blood to the brain.  It's possible that you have both POTS and Epilepsy, but even POTS can cause non-epileptic seizures.

If it helps, I've been diagnosed with Autonomic Dysfunction for just about ten years, and I'm having an EEG this week as well.  I hope you feel better!