Over POTS

[78kell]

Hi everyone my name is Kell this is my first time posting anywhere.
I was diagnosed with POTS early this year..... finally I had an answer to all the weird things id been feeling for years. I really was starting to think I was going freekin insain or I was just a hypercondriact.  Sometimes I think it would probably be better then POTS at times. Lol
I have 3 small children 5 and 3 and 2 which make it hard when I need to rest so alot of the time if my hubby is at work I just have to play "normal person "and deal with the symptoms. Then I get to go to work, which im lucky I can do. Im not letting this get me down but sometimes its really hard and if my parents didnt own the business I definitely would not have a job.
Im looking for a docter that doesn't just google my condition. Im in nsw if anyone knows a good docter id love to know.  Ive been on verapamil, inderel, corbeton and nothing seems to help. I seem to be super sensitive to medications. Id love someone to relate to and talk to about this, someone who actually understands.

[78kell]

Thanx for you're reply.

[Heiferly]

I'm sorry, I'm not familiar with the abbreviation "NSW," where is that exactly? The one thing I wanted to make sure to let you know is that, looking at the meds you said you've tried, it doesn't look like they've tried you on many of the first-line treatments for POTS. Have you ever taken Midodrine? Florinef (fludrocortisone)? Mestinon?

Calcium channel blockers (like verapamil) aren't usually the go-to treatment for POTS. The other two medications you mentioned are beta blockers. Those *are* first-line treatments for POTS, but even so, they don't work for everyone. If your doctor isn't very familiar with treating dysautonomia, I agree that you need to be on the hunt for a specialist who can help you. The two speciailties that typically treat POTS are EP cardiologists and neuromuscular docs.

Managing any type of dysautonomia while parenting small children is tough! Is there any way you could get some help? Ask your doctor about having an aide in your home, as this is something that is sometimes covered by medical insurance. If not, then focus on ways you can manipulate your environment to reduce symptoms. Use gates/doors to keep the children "corralled" into one room so you're not having to chase all over the house or up and down stairs. Have someone help you prepare meals ahead of time and freeze them, if cooking is hard for you. Crock pots and steamers are also very POTS-friendly as you can just cut everything up, drop it in, and it will magically be a meal in a number of hours.

Have you tried compression hosiery? That's another thing that can help reduce symptoms, especially when you need to be upright a lot during the day.