the cause of pots

[ezim77]

I dont know what caused my POTS. I have heard people say they had symptoms since they were young, virals, accidents, and pregnancy. Any one like me that does not know? Any ideas? What test should i request?
All the heart est came back fine. My only positive test was ttt>

[LivingInHope]

I've heard sometimes it can go in remission.  I think with some, it may get worse- I was diagnosed with P.O.T.S. more than six years ago and I don't know that it's gotten a whole lot worse.  My holter monitor high number was up 8 beats per minute compared to the one about two years previous.  But the heart's capacity when exercising at my age I believe is still more than the 160 my heart rate got to standing up from laying down.  One key I think is to keep doing as much non-strenuous upright activity as you can to try to prevent your orthostatic intolerance from getting even worse.

[ezim77]

I also heard people saying they got worse as time goes on. Is this true? I dont want to get worse, Im looking to get better. Sometimes it seems hopeless.

[LivingInHope]

There is still research going on trying to figure out things about P.O.T.S.... they don't have all the answers at this time.  You might see if you could get a standing norephinephrine blood test.

[invisiblyme]

The tests that I had done were EKG, Echocardiagram, tilt test, and stress test.  Also blood tests including vitamin D, thyroid, sugar and more that I can't remember.  I was also made to wear a holter monitor(spelling?)