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Blood Disorders Community
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16859853 tn?1452577723

Should we create a report out of the symptoms announced in this caht group?

I am a doctor, and also a Beta-Thalassemia Minor career, my children have it too,  As a patient myself I have come to believe that urgent research is needed by  health care professionals and that this condition is not as harmless as the medical community has declared it.  It affects lives and day to day activities.  We need to collect a synopses of the symptoms most people report in this and other chat groups and create a grass-root report on Beta-Thalassemia Minor, which will be much more valuable than studies by non-affected and somewhat disconnected researchers, but the report needs to be done carefully to minimize bias. Thanks
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