My tumor Shrunk

[TiredSick]

After 2 years of Dostinex i found out in Dec. '09 that my tumor shrunk and my prolactin level was down and my testosterone was normal.  From Dec. to Feb. i lost 15 lbs without working out...could this be because the tumor shrunk?   Is anyone in the same situation?

[rumpled]

The medication should have shrunk the tumor. The kicker is that you have to stay on the medicaition - or it will grow right back. The dose may or may not be lower, but you can never go completely off it, and you still need some monitoring forever. If you still have the problem then the MRI could have been read wrong or the tumor shrank to 3mm and it fell between the 3mm slices of the MRI and your doc should still treat  you as if you have a tumor. Did you have a proper pituitary MRI - dynamic MRI? Did you get a copy of the report (and MRI?)? Do you get copies of your labs? Prolactin can also be raised by other hormones so others should be checked as well.

You should be under the care of a neuro-endo at a pituitary center. If your endo is not up to the task find another one who is.

By *problems it brings* I am assuming lactation - are there other issues? I had this tumor myself - and another... it was not fun.

[luvmykiddz1070]

I was tested in 2001 and told I had a 4mm prolactinoma. Then after a year of dostinex, I was retested and told the tumor was gone!  No sign of it.  So where did it go?  Why do I still have the problems it brings?  Has anyone else out there been told this?

[rumpled]

It happens as the hormones are normalizing. Just make sure you keep up with the monitoring - blood tests and all - to make sure all stays on track. Hormones effect each other.

Once a pituitary patient, always a pituitary patient.