Post Pituitary Surgery-How did you feel?

[syfy]

I am new to this, but here it goes...I am 32 years old and  I just had a pituitary tumor removed 3 weeks ago. I have been trying to find out how people felt after the surgery. I of course have headaches, and dizziness. But it actually feels like my head is clearer...before my surgery I couldnt seem to form a thought, I was so weak. I still have weakness but not as bad. My eyes used to hurt, and very hard to focus. I didnt have the best experience after the surgery, they didnt even give me discharge instructions. During my follow up with the O.R. nurse she finally told me that I cant sniff, blow my nose, try not to sneeze and dont hold my head down. She said for at least 2 to 3 months!! Is that for real???? I am on hydrocortisone 3 times a day, and before the surgery i was diagnosed with hypersomnia, because i couldnt seem to stay awake. I would wake up, and about 1 to 2 hours later I will fall asleep. I had to stop driving because i would fall asleep. I am more alert now, but how long will it take to start feeling normal again??? Will I ever feel normal again???

[rumpled]

Nothing against you Yehuda88... but this thread is a confused mess!
The person you are posting to is mixed in and in a part that is 6 years old, so sadly I don't know if he will see it, but yes, you do have a point.

I do hope that NO ONE will ever post in this thread again... it is so much nicer and easier when you post in your own thread so you have all responses to one story in one place.

It is also harder on phones for a long thread like this to load.

[yehuda88]

Hi,

check your GH level in several tests.
sleepiness at 2-4AM ,
social shyness
=are also  symptoms of low GH

[blackbutterflyy]

My tumor was removed October 2013. So its now a bit more than a year after the op.  All my hormone tests are right no problems there. But i still suffer from aches and pains jumping through my body like little lightnigh flashes and freaky twitchy feel toes and fingers especially when im relaxed or trying to fall asleep. I get cold super fast but my right arm feel like someone is injecting ice water into my bones and is way worse than the rest of my body then other days it feel like my muscles are littterally on fire burning from the inside out. My finger nail beds burn like crazy sometimes. About % months after the op i started getting super dizzy when i move forward walk fast or drive in a car not when i sit lie down or stand up fast. It feels like someone is compressing my brain squeezing it together on both sides i feel dizzy my heart starts beating very fast my legs go lame all just in a few seconds then the cycle starts again??? does anyone have these symptoms ?  

[blackbutterflyy]

My tumor was removed October 2013. So its now a bit more than a year after the op.  All my hormone tests are right no problems there. But i still suffer from aches and pains jumping through my body like little lightnigh flashes and freaky twitchy feel toes and fingers especially when im relaxed or trying to fall asleep. I get cold super fast but my right arm feel like someone is injecting ice water into my bones and is way worse than the rest of my body then other days it feel like my muscles are littterally on fire burning from the inside out. My finger nail beds burn like crazy sometimes. About % months after the op i started getting super dizzy when i move forward walk fast or drive in a car not when i sit lie down or stand up fast. It feels like someone is compressing my brain squeezing it together on both sides i feel dizzy my heart starts beating very fast my legs go lame all just in a few seconds then the cycle starts again??? does anyone have these symptoms ?  marissa.***@****

[dlhvac]

CSF has a metallic taste unlike regular sinus discharge

[SWSA28]

Hi ladyekaw,

Do you mind sharing your hydrocortisone intake schedule...?

Thanks :)