My son has been having some major medical issues for the past few months. The initial onset of his symptoms were much like diabetes / low blood sugar. Vertigo, vision problems, shaky feeling, no energy, nausea, head ache, pale completion, obsessive thirst, frequent urination, aches and pains. We have also since discovered that his blood pressure drops (80/55 or lower) when he is feeling bad.
So we started down the testing path. We have had him to several Dr's and have not made a lot of progress. He has tested positive several times for low cortisol. His MRI has shown a 6MM X 6MM Cyst and was classified by the radiology Dr as a probable Rathke's Cleft cyst.
Neurologist has put him on for treatment of amitriptyline for the Headaches and classified the cyst as an incidental finding. However, he cannot explain many of the symptoms.
Endocrinologist is concerned about the very low cortisol and has also noted some serum issues in his urine. However she indicates all other hormone levels are looking OK in the testing. She states it is unusual to have low cortisol without other levels being off. They have ordered a water deprivation test along with hormone stimulation testing. (Diabetes Insipidus or Addisons Disease have not been ruled out)
Neurosurgeon visit this week with a person that specializes in Rathke's Cleft and other Petuitar Cysts in Children.
We are just searching for answers. He is a very good student and has always been very active. Since this has started on bad days he is not off the couch more than a few hours. He hasn't been to school in well over a month and his quality of life has plummeted.
Any suggestions would be greatly appreciated!