Hi!
I'm on Dostinex for four years, diagnosis micro prolactinoma. Under Dostinex my prolactin levels became normal, but my health situation is from year to year worse- fatigue, tiredness, low energy, low libido, depressive moods. In June 2011 also a hypothyroidism was diagnosed, I'm taking hormons and the thyroid levels are o.k. now.
But I feel more and more worse, having strong anxiety, a feeling of being in a huge stress, like short before some very important exam, with high heart rate ( 80-100 in a minute), which is causing me even more anxiety. I lost 10 pounds during the last 6 weeks. My doc gave me beta blocker against high pulse and anxiety and this helps somehow, but it isn't a solution. I also have to urinate much more frequently like usual. The doc suggested also antidepressants, but I just don't want to accept that all my problems are mental! I feel there is just something wrong in my body. Recently I finally saw the results of my MRI's and the reviews from the radiologist- he wrote there is only a suspicion that I may have a small micro prolactinoma, but he isn't sure about it! No confirmed diagnosis! But my endo always said I have a prolactinoma and have to take dostinex, no matter of the side effects which I have all the time. Further the radiologist wrote that my pituitary is slightly inhomogeneous with the tendency to loose slightly on its volume, compared with the last two MRI's from three and two years ago.
So now I'm totally confused- do I have a prolactinoma or not?? Do I maybe have a hypopituitarism, when my pituitary is getting smaller? My last blood labs from June 2011 showed that my cortisol and ACTH are still in the norm range, but very low. Would a adrenal weakness match with my symptoms?
I just don't know what to do, I'm totally down because of my symptoms. I have two kids and I can hardly menage my day. I don't trust my Endo anymore and an appointment at another Endo I have on the end of november!
Please, what would you say? Some ideas? I stopped with Dostinex two weeks ago, because the combination with Betablocker was just too hard, my blood pressure was terribly low and I felt totally depressed.
Thank you so much!
Greetings from Germany!