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pituitary microadenoma

Hello. I am a 20 year old female. Lasr march i was diagnosed with a pituitary microadenoma and pituitary apoplexy. The bleeding stopped and the tissue is regenerating. The symptoms I am experiencing are the following: constant weakness, fatigue, leg pain/burning sensation, abdominal cramps, dizziness. Soem days I can't get out of bed and I feel so weak and tired all the time. i just have an overall sick feeling. What is making me crazy is that I've had numerous blood tests for all eight hormones produced by the pituitary and they all come back within normal ranges every time. So, currently, I'm not on any medications. Did any one else experience similar symptoms with a pituitary tumor? and Why am I feeling this way if my hormones are normal? I'm going crazy.

Keep me in your prayers.

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Avatar universal
What tests did they run and at what times, were you fasting (12 hours).

Your doctor is playing roulette with you to not have you on replacements. BTW - middle is not the best for most if not all hormones - some you want to be at the high end of the range, some low end, and well, a few middle - but you don't feel well - and you need to be treated.

Find a proper doctor, and get on the replacement that you need. It needs to be maybe things that they have not tested - growth hormone or vitamins or what... but you would not be feeling this way if you were on replacements. Heck, I am on most replacements and it is hard enough - off them, I would be totally non-functional.
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Avatar universal
You might ask for a saliva cortisol test. A saliva test is more sensitive to abnormalities than a blood test, I believe. My son's adrenal stress showed up on a saliva test at least one year before it was seen in a blood test. He was in pretty bad shape by then. Unfortunately, his doctor didn't act on the saliva results, as the test was done through a nutritionist, and not by him. (My son had a pituitary craniopharyngioma).

Everyone is a biochemical individual. What's "normal" for some can be abnormal for you. Your doctor should treat your symptoms, regardless of a "normal" blood result. Find another doctor if they won't treat your symptoms.

See if there is a neuro-endocrinologist in your area you could go to. Your symptoms should not be ignored, based on hormone tests alone.

Enzy
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