Aa
possible Cushing's
I need someone's opinion,, please. Ok,, I had to take a Dex test because my Cortisol level was high,, 26.4 in a fasting state at 8AM . I suppressed super low I guess at barely 1.5. So the Endo I know is going to say I dont have Cushing's , even though my Primary thinks I do. So ,, what does this mean to have an abnormal suppression response,, the fact that it went extra low?? Im so confused.
You did not suppress *super low* - the cut off is 1.8 so you were just a little bit off.
Inexperienced docs use this as a test of exclusion - experienced doc use this test to help determine location (which shows more of a pituitary location, not adrenal). Need more testing for both diagnosis and source (location) to be sure.
Inexperienced docs use this as a test of exclusion - experienced doc use this test to help determine location (which shows more of a pituitary location, not adrenal). Need more testing for both diagnosis and source (location) to be sure.
I just read that as well, that , that wasnt super low,, what was that Endo talking about?? lol I really need a new Endo,, Im going to push my Primary for a new referrall.
Your test should be disregarded - it was not done properly as well. Pill taken the wrong time and draw the wrong time.
That I totally agree with,, She was saying that I could take it up to 9 am and that would be fine,,, she really doesnt want to diagnose me I think lol I am going to have a talk with my primary Tuesday about a new referral ,, I really dont like this Endo. I was close to,, I re read my labs and my level was 1.6 not 1.5 ( not a big error but,,,,) lol I can see this is not going to be a quick fix though.
I totally agree, once agin lol,,, I was reading the same stuff you just said. I have the feeling she doesnt want to deal with it,, just the high blood sugar issue,, lazy Endo ;(,,, Ill definately be looking for another one! Is it normal to have so much muscle discomfort??? I used to be in such good shape,, I was a gymnast,,and now I get sore from a simple walk uphill!! My back and shoulders and neck are killing me,, have you experienced that yourself???
Yes. The pain is said to come from cortisol coming and going but the pain is not really *known* as a symptom except for weaning.
Corticosteroids treat inflammatory disorders like arthritis - so when the levels in your body vary from high to low, the inflammatory levels in your body go up - it hurts. A lot of us have high inflammation titers - like SED, ADA or CRP.
Corticosteroids treat inflammatory disorders like arthritis - so when the levels in your body vary from high to low, the inflammatory levels in your body go up - it hurts. A lot of us have high inflammation titers - like SED, ADA or CRP.
Thanks for that info,,, I was wondering if I was just goin crazy or not lol I feel like I have been at the Gym for hours everda or something,, aggghhhh not nice ;(
well I got the order for a few more blood tests and a ct scan so I got a lil further lol,, how accurate is the ct though??? the pain, well I got Advil prescribed lol,, ok, Its really Loding but its the sme thing lol I gained 4 more pounds though,, in 1 week! jeez at this rate I am going to be huge. I am just going to do Atkins and I guess the treadmill for 2 hours like she wants,,,, my back is gonna hurt so bad ,, what do ya do though. Ok,, so again ,, how accurate is a ct scan???
Just make sure the CT is not for the head - MRI for pituitary is standard, not CT. Dynamic technique is what you need - with and without contrast.
Cortisol does not allow muscles and bones to repair - so if you exercise a lot, you will do damage - be prudent in what you do.
Cortisol does not allow muscles and bones to repair - so if you exercise a lot, you will do damage - be prudent in what you do.
Thanks for that again :),,,, I can see how my muscles are just wrecked right now,, not to mention,, where she gave me my whooping cough vacination is so sore and swollen and red with a large bump on it,,, ;( Its killin me. Ill see tommarow if that ct was for my head or my adrenals,, god I hope its not for my head lol
If it is, I would decline - why subject yourself to a test you do not need.
If you have a low immune system and you get a live virus injection (no idea if that one is) you can get a bad reaction. I am told not to get any live virus injections - it pays to ask.
Low impact!
If you have a low immune system and you get a live virus injection (no idea if that one is) you can get a bad reaction. I am told not to get any live virus injections - it pays to ask.
Low impact!
I had a pretty bad reaction lol Its about the size of a quarter, raised and red,, sore burning and itchy agghhh my whole arm is still so sore and my neck on that side,, I swear it wasnt needed. Well,, I had the worthless CT scan on my head!! I thought for sure it would be my Adrenals she was lookin at with a CT and not an MRI but nope!!! another useless test lol I told the radiologist it was pointless and he thought otherwise lol He said,, " if there is a tumor on your pituitary even a super tiny one we will find it" lmao well he was a confident one huh? lol " sigh" lets see what this reveals,, I think we both know what though ,, nothin,, ;(
And the doc will take that nothing as nothing - even though that is not the proper imaging study... galling.
I would go see a doc re the injection site - you may need some help with that! It sounds like you had a reaction. I know I am allergic to the preservatives in the shots so I am a goner with them and cannot get most flu shots.
I would go see a doc re the injection site - you may need some help with that! It sounds like you had a reaction. I know I am allergic to the preservatives in the shots so I am a goner with them and cannot get most flu shots.
lol your so right there,,, I went in to see the doctor on staff about my arm and he immediately said,,,, are you being treated for Cushing's, I saw your back ,,,,,, lmao,,,, I guess its apparent to everyone but the tests lol I said I am getting testing done for it but my Cortisol is 27 and he said,, Im sorry to tell you this but in my oppinion you have it, where was he months ago lol also,, I have gained another 2 pounds in 2 days??!!!! what gives with this disease,, I even have been walking and eating less,,,I guess my lymphnodes in my neck are swollen and my throat is red,, didnt know that lol ,,,I dont know why no one will give me pain relievers stronger than aleve though ;(,,, Im in constant pain on my right side of neck shoulder and upper back,, but they jus prescribe me NSAID, S,,,:(......is that common??? is there a reason why I have to just grin and bare this pain?? do they do this to Cushings patients?? OH ,, and yeah,, I had a bad reaction to the Injection lol I was like,, duh! look at it lol
Funny how that works... the other docs are blind!
NSAIDs have an anti-inflammatory effect and that does help - just make sure you eat something with the pills or you will ruin your stomach. You don't need an ulcer too.
Yes, it is a rite of passage to suffer. Boo.
NSAIDs have an anti-inflammatory effect and that does help - just make sure you eat something with the pills or you will ruin your stomach. You don't need an ulcer too.
Yes, it is a rite of passage to suffer. Boo.
lol,, well after all this I hope Im in the club hahahahaha again,, thanks for all your help,, Id be almost clueless if it wasnt for you,,, cheers!
I had a CT scan done about three years ago, when my macro adenoma tumour was growing... The CT Scan showed nothing then when I was experiencing severe sharp stabbing pain headaches... Good Ol' Family Doctor looking out for me, I don't even think his mind was in the same room, it was out on a yacht.
LOL Im sure it was ,, or he was thinking bout that Golf tournament coming up lol,,, Ya,, I dont have much faith in this CT scan ,, Im sure it shows nothing,,, and we still wont know why I have a high Cortisol of 27 and this silly buffalo hump on my back even though its classic Cushings lol What you went threw is what Im afraid of,,, I guess it will be further testing ,, aghhhhhh
Well,, I got my test results back again lol,,,, still high Cortisol,, now high Cholesterol,,222 to be exact,, Prolactin normal( I was surprised by that as my daily headaches) and still dont know my CT results,,, is high Cholesterol common in cushings??? A new thing is though,, my body cramps up severely when I stretch to hard or walk to much,, Its like its turning on me lol I have to laugh at the situation or I might jus yell at my Doctor ;)
My test results are confusing ;( ,,,, ok,,,, high Cortisol ( 26.5) ,,,, low protein and low calcium,, high glucose( 104) and low red blood cell count,, high lipids 222 and normal prolactin,, pth intact and calcium,,,normal prolactin,, good blood pressure I think lol 102 over 68,,, but Im gaining weight fast around 3 to 4 pounds a week no matter what I do,,, I have this stupid buffalo hump and body aches and muscle cramps,, headaches every day,, wired but tired feeling,, fatigue and muscle weekness,, extreme edema in the ankles calves,, and Im getting spider veins now everywhere agghhh,,,, this CT scan better have something on it,, Im worried my Doctor is just going to dismiss me n put me on cholesterol; and diabetes meds which I dont need yet!!! Im getting frusterated!!!
High cholesterol is common with Cushing's - but also a lot of things. So is high glucose - many develop diabetes type II. All that resolves when the source of cortisol is removed.
Not everyone is the same - so the doc has to test test test and make a case and find the source.
Not everyone is the same - so the doc has to test test test and make a case and find the source.
Ya,, I was prego 2 years ago ( child didnt make survive) and I didnt have high glucose then or high lipids,, so this is a new development in the past 2 years,, I am 40 pounds heavier but jeez not 100 ( yet) so I dont attribute those symptoms to gettn heavier,,, the high Cortisol I think and the buffalo hump and physical stuff kind of tell me its more than gaining weight lol.... ya im managing to gain almost 3 pounds a week now even with diet n excercise,,,, Ill make my Endo do all the testing he can,, well, as soon as he gets back from vacation! lmao
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She was probably reading the levels for normal cortisol. When you get the test the lab does not know you had dex so the ranges are still for AM cortisol - so for that, you are, gee, really low - but for the test - you almost made it - again, showing, she has no idea how to administer the test.
Find another doctor.