10 things NOT to say to some1 with Chiari or Syringomyelia or related conditions for that matter....

[selmaS]

TEN THINGS YOU DO NOT SAY TO SOMEONE WITH CHIARI / SYRINGOMYELIA!

This was borrowed by Teresa Petersen on Wednesday, 09 March 2011 at 15:49 from Face book after B.Brookes posted it in Karens chiari friends.....I had to share with u all and hope u add to the list : )


10. MUST BE NICE 2 SLEEP ALL DAY.... (I never sleep, I'm in too much pain)

9. YOU'RE LUCKY U DON'T HAVE 2 WORK.... (I'd love to work again, a-hole)

8. I CAN RELATE..... (no, no, no you can't relate, call me when you have had your entire backside cracked open like a lobster)

7. JUST TAKE SOMETHING.... (what else could I possibly take? I'm on every medication known to mankind)

6. JUST TRY HARDER.... (to do what?)

5. JUST BE POSITIVE.... (this IS me being POSITIVE)

4. U JUST WANT ATTENTION..... (that's right, I had 7 hours of neuro surgery, and 12 other surgeries, JUST for ATTENTION)

3. IT'S ALL IN UR HEAD..... (duh, yes it IS!)

2. IT COULD BE WORSE..... (it IS worse)

1. BUT U LOOK GOOD, are you sure they diagnosed you correctly?......... (just walk away)

[ChiariWolf]

#3, #7 and #8 all deserve a good hard smack upside the reality check of such a person!!! Not that the others are any better but those are my personal pet peives. But then again I remind myself it's really a good thing that those close enough to me to make those comments don't understand as that would mean they had CM.

I also hate "Oh yes, I've had neck problems for years." Usually followed by "I just take blah blah blah and it makes thing bearable for me" .... walk away and take a deep breath then change the subject.

CW

[*Stormy*]

ME too!!  :)

[selmaS]

  

  Looking forward to seeing that Roy......

[Roy902]

I am currently complying a list of say the TOP TEN for things that are said
by docs at the ER & a list of the top ten by the Receptionists at the ER DESK when they ask what brings you to the ER today / tonight.  You know the   drill they look up at you and give you the deer in the head light look.  

[*Stormy*]

That's what I do a lot of times too... I am stubborn and will do things despite how I feel and on the good days I try to tell myself that maybe I am just being a wimp. But then the bad days come and I can barely function and I change my mind again and realize that I really am suffering. It's funny how our minds will go back and forth like that... It's also hard for ppl close to me to understand how difficult it is for me b/c I always put a good face on and I this point I find complaining about the pain is pointless. That's why it's great here b/c you DO find ppl who understand..glad to have you join us:)

Stormy

[pixiedust77]

new to this sharing online but reading all this makes me feel a little normal..I am not okay but will look and act like it and some times i even convince myself but really  i am just learning to live feeling this way,, so glad to have read yalls post,,,