Yes there are things/activities you should avoid....at this point post op...walking is one thing you should be doing and increasing how much you do a little at a time.....
We do have a list....
Activities to avoid with Chiari...
The subject no one wants to hear about, but chiari and syringomyelia are life-altering conditions and you WILL have to face that and change some major things in your life. You will find people with these conditions who continue to do some of these things, but they do so with the knowledge that it can severely alter their current condition for the worse. The following are just some of those No-No’s:
NO neck stressing activities, such as roller-coasters, 4-wheelers, skateboards, horseback riding, motorcycles, wave pools, backpacking, falling asleep in chairs, extended reading with head bent ect.. Anything that “jars” your head and/or spine is a definite no-no.
NO neck stressing sports, such as water skiing, snow skiing, snow boarding, sky diving, bungee jumping, diving, playing tennis, basketball, soccer, football ect (Just trying to cover all the basics – you get the idea.)
NO contact sports.
NO Chiropractor!- Especially at the neck for chiarians and for those with a syrinx, no deep tissue in the area of ur syrinx.(The chiro should be well versed on Both CM/SM)
NO straining which includes straining to reach something, or even straining during a bowel movement. Take a fiber supplement every day if you tend to get blocked up.
NO moving furniture or heavy objects around by pushing, pulling, lifting, or any other way. Pick up nothing heavier than a gallon of milk. I know – that sounds impossible, but keep that gallon of milk in the back of your mind.
NO moving around in the dark!
NO putting yourself into stressful situations or relationships. Try to relax, avoid noise and keep your neck muscles relaxed.
NO twisting your spine – try to keep a good posture with your spine lined up and straight.
NO bending over. lower yourself to the floor by bending your knees – not your back.
NO sudden spinal/neck movements.
NO using the hair wash sink at the hair salon.Instead ask for the special try that most hair salons have that are designed to accommodate people who are unable to bend their head/necks backward.
NO Lifting more than 15 lbs when strength training or backpacking.Heavy lifting is generally not recommended especially if you have a syrinx.
AVOID sleeping in a head down position.
Avoid cervical traction.
Avoid lumbar punctures, spinal taps or epidurals, unless it is a well informed chiari dr....if a LP is drawn too quick it can cause the tonsils to herniate even further.Done incorrectly, this can be very dangerous for a chiarian.
AVOID doing any kind of activity that causes you to bend your head backwards, such as: bending back to gargle, washing hair in the shower ect.
AVOID food with too much salt.Especially for woman during their premenstrual period.
DON'T participate in any physical activity that puts you in jeopardy of falling and or creating trauma of any kind.
DON’T try to keep commitments when you’re feeling badly. Listen to your body.
AVOID sleeping in a head down position.
Avoid cervical traction.
Avoid lumbar punctures, spinal taps or epidurals, unless it is a well informed chiari dr....if a LP is drawn too quick it can cause the tonsils to herniate even further.Done incorrectly, this can be very dangerous for a chiarian.
AVOID doing any kind of activity that causes you to bend your head backwards, such as: bending back to gargle, washing hair in the shower ect.
AVOID food with too much salt.Especially for woman during their premenstrual period.
DON'T participate in any physical activity that puts you in jeopardy of falling and or creating trauma of any kind.
DON’T try to keep commitments when you’re feeling badly. Listen to your body.
-If surgery is suggested, asked which type they do, and why.....ie- endoscopy, bony decompression, or PFD w/duraplasty and what kind of patch is used.
-after surgery, how often will you be seen by the dr for follow up visits, MRI's ect..
-is everyone in the OR covered by your insurance, ask for their names and contact( check this with your insurance comp)
-if you traveled to your NS, how long after you are released from the hospital, does he need you to stay in the area.
-when scheduling surgery, ask about local "houses" that you and your family can stay at lower rates.
ie- WI- Kathy's House- see our links page for more info.
TCI in NY has Variety House- see links page for more info
-will the Dr check you for related conditions like tethered cord, syringomyelia(syrinx) or Ehlers-Danlos (rejection issues)
-what % of benefits does the Dr feel you should get from having surgery
-if you are not a surgical candidate at this time, ask what treatment options are available, Pain Management, meds, ect...and how often you will be monitored, via a visit or MRI.
-ask if the NS can refer you to a good Neurologist in your area that understands chiari.
Oh, ok. It's getting more sore everyday. I feel today, worse than usual. My neck and shoulders are super stiff today causing a bad migraine.
I usually wash it every couple of days maybe three. I used to wash it all of the time but being out of work, I let it go. I wasn't sure how long the healing takes and I'm fighting more headaches with everyday. I felt decent right after surgery and up until a few weeks ago. I feel like it's getting back to the way it was. Are there certain things that I shouldn't be doing because I haven't really limited myself much. I hope I haven't done anything to the area to undo what the doctor did..thanks for your input. I really appreciate it.
Hi...I had that and know just how you feel....at times I still do not like to lay right on my incision 6 yrs later...it just depends ...as it changes....but nothing like it was post op...
The tightness can be due to washing your hair and the skin drying out....how often do you wash it?
If it is from washing your hair , try to do it less often and use a mild baby shampoo to help with the dryness...