Anyone had any luck going to ER of NS hospital for help?

[Shelltn]

I'm developing new symptoms & worsening ones which are literally scaring me more than usual & I'm considering driving 4 hrs to an ER close to where I'm trying to get a referral to. I went to ER local here & once again,i was the teacher, anyway,i thought I was having mini strokes, right eye & right side of mouth drooping,nonstop headache over right ear for over a, week, my BP(normally 80/50 ish) was 131/57 HR 95. CT Scan showed no signs of stroke thankfully, but dr said followup with pcp today, which I did,& he said he was used to having patients come in at Mayo (didn't even know he studied there lol) & they can't turn u away & u may not get the answers u want, but it's up to me while waiting on my referral. He's even tried calling the NS I'm waiting for referral on & he said they won't let him near him til the referral goes through. It could take a couple more weeks or longer for the ref & my symptoms are getting more frequent,more severe,& new ones starting & I'm scared this insane waiting game is gonna cost me more permanent nerve damage.....

I know it's a long drive, but I'm the only one who seems concerned enough to take,a, chance.....

Any, suggestions besides hurry up & wait or see what I can find out now... I know I won't be taken in for surg, I just need answers from someone  who knows wtc is going on that I don't have to, explain what ACM is!

[Shelltn]

And vandy is the closest ER with the knowledge I need, so I guess it's road trip time for me :-)  I'm not going to let  my persistence  be hindered by a couple hundred miles lol.... I'll PM u my cell #, u can txt me if u want....

Thanks for listening.....

[Shelltn]

I'd b driving, I'd stop & rest & I have friends in the area, so I wouldn't b alone. I'm just sick of being the teacher & I'm willing to drive that far in order to sit down & have someone explain some things  to me for a change. I need answers in order to cope with this. even if it's  not the answers I want, at least it b would b from someone who knows about it.  

[selmaS]

  Hi...my NS said to suggest that to members that do not have ins that need to go to an ER to go to one that u know has a NS that does specialize in Chiari, they all have to work in the clinics and ER so u get the same care.......

4 hours is a bit much to travel....

  The bells palsey like symptoms r not uncommon with chiari...I had it while at my NS's office....they can last a few minutes to a few days....

  I know u r scared and the symptoms r increasing, but the stress u r ubder r adding to all of it...please try to relax.

Since the Drs said u were ok, then all u need to is rest...calm down....

   I would not suggest driving 4 hrs to go to an ER, as the drive itself can make u worse.Who would drive?