Arnold Chiari?

[kamusick1]

Hi I was looking at my MRI and noticed something didn't look right to me with my cerebellum,  It looked like it curved into my spinal canal.  I have had terrible occipital headaches along with lots of pressure constantly at the base of my skull.  I have gone to my FP several times for the headaches.  I have had a headache for 6 days straight now.  Tried Motrin, Lortab, heat, ice, went to dr got a shot of Toradol, mederol dose pack steroids, and maxalt to try if nothing else helped today.  Still no relief.  Seems to bother me more when I get up. I am attaching mri photo. I was just wondering if it looked like a Tonsil herniation to anyone else or was it just me.  The radiologist did not mention it at all in my report.  Any suggestions and comments would be appreciated.  Also have had some mental fogginess and ringing in ears almost all the time.  Have been a little clumsy also.

[kamusick1]

I heard back from Dr. Oro office today.  They told me that I had Tonsillar ectopia and that I needed follow up with neuro.  Which I have an appt with a NS here in Oklahoma tomorrow.  That is all they could tell me.  They said they had contacted my pcp and spoke with them so hopefully we can get this fixed.  I am still having headaches and dizziness, ringing in ears, foggy thinking.  Anyway wanted to let you know what I found out.

[selmaS]

  Well I am not all that surprised as I have heard he likes to see those with herniations larger than 5 mm's...I do not understand that except that it is a way to reduce the # of patients he does have to deal with...as u and we all know that there r more of us then there r chiari drs.

Keep pushing, as there r Drs , chiari specialists that will help regardless of the herniation size, they look to how it is affecting u.

[kamusick1]

So this is basically the same thing as chiari

[kamusick1]

How are you feeling?  Hope you are doing better.  
I went NS Friday and he told me he didn't see anything on my MRI that looked even close to Chiari.  He thinks I have occipital neuralia and is referring me to a pain specialists to get injecion.  UGH!!!  So, I have taken upon myself to fill out the information sheets for Chiari Institue and have faxed them my info.  Hopefully they can do something.  I will travel where ever I need to to get this addressed appropriately.  I actually have some famiy inPittsfield Mass. so it would be nice to visit them as well.  No one around Oklahoma seems to want to hear what I am saying.
Again, Thanks Selma for your support.  You are a woderful advocate on here. You are helping me more than you probably know!!:-)

[selmaS]

  I am glad I am able to offer u some support.....and thanks for asking I am doing a bit better, I think I have another reaction to a med they put me on...I am getting hives,.it seems to always be something...huh?

I went thru a few Drs close to home and even traveled to the next big city Philadelphia and  that Dr was supposed to be a chiari specialist...nope....some list it , just to get the work and $$ but do not do the research a true chiari specialist does or have the experience they do, so u will find it well worth it to get their opinion.

Keep in mind not all with chiari r surgical candidates.