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What are some of the related diseases
what are some of the other diseases related or linked to chiari that we should ask our doctors about?
No they havent tested me for EDS i asked my NS about it she laughed it off. My pcp wants me to be tested for Ms. I think i will just try to relax more & wait on my spec app maybe then i shall get some answers. :) Thank you again for your great answers & being informative it really helps to have people that know your pain & constant worries.
COMMUNITY LEADER
Have u been tested for EDS?...it can cause joint pain.....many times mis dx'd as fibro...which is not a far stretch for the bursitis....
U r welcome : )
I went in for my results today for my hip he stated he thinks its bursitis however u spell it. I also have ICP nerve damage peuso & vision issues plus chiari. I feel like i went into surgery in a whirlwind i guess i didnt know much about chiari. I did however get my appointment with the spec for the 21st! yay!! Thank you for your answers.
I'm not sure how to respond but I'll try.
There are a number of reasons someone might have Chiari issues so I don't know that there's any one checklist of things that if you have the condition then you automaticly should have these other conditions.
I'd pursue getting relief/ help for all your symptoms and taking it from there.
I'm versed in connective tissue issues since Ehlers Danlos Syndrom runs in my family and has been part of both my Chiari experience and my youngest sister's. For us knowing about this has helped us make better decisions regarding our care. My sister's upcoming Chiari surgery for instance, will probably end in the need for shoring up of her cranium because of her connective issues. For me it's knowing that I also needed to get tested for TCS, and fixing it.
I also have had experience with neurootological (neuro ENT) issues due to high cranial pressure. A great doc in Baton Rouge, LA helped me a lot by fixing a fistula and fixing some inner ear issues. He was versed in Chiari and worked with a neurosurgeon who had Chiari knowledge as well.
I'm sure others can add more.
There are a number of reasons someone might have Chiari issues so I don't know that there's any one checklist of things that if you have the condition then you automaticly should have these other conditions.
I'd pursue getting relief/ help for all your symptoms and taking it from there.
I'm versed in connective tissue issues since Ehlers Danlos Syndrom runs in my family and has been part of both my Chiari experience and my youngest sister's. For us knowing about this has helped us make better decisions regarding our care. My sister's upcoming Chiari surgery for instance, will probably end in the need for shoring up of her cranium because of her connective issues. For me it's knowing that I also needed to get tested for TCS, and fixing it.
I also have had experience with neurootological (neuro ENT) issues due to high cranial pressure. A great doc in Baton Rouge, LA helped me a lot by fixing a fistula and fixing some inner ear issues. He was versed in Chiari and worked with a neurosurgeon who had Chiari knowledge as well.
I'm sure others can add more.
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Hi-
Syringomyelia syrinx- tethered cord- retroflexed odontoid-ICP intra cranial hypertension-Ehlers-Danlos Syndrome-sleep apnea-Hashimoto's thyroiditis-scoliosis-DDD degenerative disk disease-spinal cervical stinosis-RA rheumatoid arthritis-sinus issues-Nystagmus vision issues-
That is pre op....some can be post op, but there is a post op list as well.It all depends on how u respond to meds and the surgery....and there is no way to know until post op....and having the right NS can be a factor in avoiding some of them.......
I hope this helps answer ur question.
We do have a list of questions for the NS in the Health Pages-http://www.medhelp.org/health_pages/Neurological%20Disorders/Questions-for-a-Chiari-NS/show/1155?cid=186
"selma"