Hi, my name is Ellie, I’m 21 and live in the UK. I was diagnosed with Chiari Malformation when I was 15 years old and ever since then have suffered on and off with pains, however, this last year has seen a massive increase in my pain and symptoms, which have included passing out and being taken to A&E. I have had MRI scans done and there does not seem to be any progression in my Malformation - nothing has physically changed. I wanted to know if anyone else has ever been in this position before? And has anyone had any successful medication that has helped them even a little bit? I have been offered nothing and cannot perform any daily activities without severe pain. I am reaching the point where I do not feel I can carry on with this pain, and am being referred back to my NL after months of begging to be heard and tears cried to my doctor. Lastly, I just wanted to know if anyone can recommend any surgery or medication, either in the UK or America that is pioneering or has worked for them, as I will save as much money as needed to get this help. I eventually want children, and do not see at the moment how I can raise kids when I am in this pain, as I can barely look after myself. Thank you for your time reading this, Ellie X