Hi all my fellow Chiarians....well I have been on a rollercoaster with trying to get in to see a specialist, which my insurance continues to tell me that I can't go out of state....This really *****, so while online I come across the Wisconsin Chiari Center, and I fill out the questioner and sent in a copy of my MRI.
Well I just spoke with the nurse and she said that the Doctor said, I have cervical stenosis, narrowing of my spine and neck...and even though I had decompression in 2009 he can still see the Chiari. Now I see the importance of seeing a specialist because my PCP did tell me that I had narrowing of the spine and she said it wasn't bad...but the sad part is she said....there was no Chiari found. I am at a loss of words because now I want to know how bad the Chiari is and if a second surgery is needed because the pain in my head is really intense. I am on all type of pain meds which only mask the problem.....Do anyone have any thoughts on what I should do??????