No, I haven't had the surgery yet. I'm scheduled for September 21st with Dr. Di. I'm still praying for a quicker surgery date! Thanks for the pep talk! I think we are viewed by drs. and others as weak, but they don't don't have any idea how tough we have to be. Everyday we have to pick ourselves up by the bootstraps and go. I wouldn't wish it on anyone else no matter how cruel they are.
I am so sorry u had to feel like that....and know with knowledge u will get understanding....we have so many drs that do not acknowledge the effects chiari has on us, so we do have to realize that for our family we can not expect them to fully understand.
One day at a time tho...ask one to visit us here and mayb this can help.
Have u had surgery...sorry I forget.....
I am on the opposite side since surgery...but for yrs, I felt like u do and was expected to keep going...and no one knew...now since surgery...I am treated like I can not do a thing and many times not given a chance.....makes me feel just as bad.....can't win ....
I think we just need to continue to raise awareness...family first and then the world : D
My Monday rant is about going to my Grandson and Grandaughter's school program Friday night, having to climb to the top of the gym bleachers and upon decent being reduced to shuffling, scooting, dragging, and barely making it out! I was so humiliated because I know my daughter in law was embarrassed to be seen with me. I looked like a drunk or drugged up (and I don't do either by the way). Of course you can't stop and explain to my granchildren's friends' what is wrong with me. The only bright side is that no matter how many times I try to explain to my children and their spouses how my symptoms are progressing, they seem to ignore me and still have the same expectaions of me. I have always been the family planner, and go-to person. My family are accustomed to me taking care of all plans for holidays and visits. From all the cooking to entertaining my granchildren and cleaning up when they all leave. I know they don't understand and maybe even want to be in denial, but I could see the embarrassment, and maybe a little concern on their faces. I was so fatigued from this experience that for the first time in my life I was forced to spend the biggest part of the day Saturday in bed. This is so frustrating and depressing :(
first one to post picks the rant topic.....
lol....deff Shannon...u get something done or enjoyed a busy day and then u r down for the count for the next 2 or 3....not fun...we have to remember to use moderation for our fun too!!!
I totally agree! My stress level is way up but most of mine is self-inflicted lol My biggest rant is when you have a good day your down for the next two days! Ugh!!!
HI Carolyn...yup, I hear u....and trying to reduce the stress myself...lol.....not always an easy task......
I don't think ur question was stupid......it does feel like that sometimes...so that is the good part, stress is like chiari as it cycles too!!
Does anyone ever feel like whatever way you turn stress is knocking on your door?...Stupid question...I'm sure you all do!! That is the mood I am in today though...I guess a good mood for a rant. Too many things to worry about...I need something to give!