http://en.wikipedia.org/wiki/Ehlers-Danlos_syndrome
This link shows many of the tests they do...I took one look and said, not me....but the nurse that is with my NS conducted the testing and to my surprise i am hypermobile like the pics show....weird...but, I was always aware that I was slow to heal and easy to bruise.
"selma"
I haven't been checked for EDs, but I think it was ruled out anyways...what is the testing for that?
HI Kim...yeah, the reports would mention demylation and lesions...however, neone with really bad HA's can have lesions.....
But recently there have been a number of chiarians that also have MS, so I know it i sa possibility for ne one of us.
Are u still taking classes?....how is ur artwork going?
I can't remember if u were checked for EDS...that along with chiari can cause muscle pains, stiffness..RA....
Keep us posted
"selma"
Oh you know I read your post wrong, I thought you were telling me it's NOT MS. You mean you HOPE its NOT MS...me too, lol. My MRI was clean though, and I looked up MRI's of people with MS and can tell the difference.
Thanks Selma! Figured it wasn't MS. I was reading symptoms and the stiff muscles and joints was what concerned me. My muslces are so tight the PT thinks it's putting pressure on my scaticia (sp) nerve and that is what is causing the leg and back pains. My legs frequently ache and feel like they are going to give out. Plus I have blurred vision. But since I have Chiari and a pineal cysts which can cuase blurred vision and now this CRPS looks like ti can cause muscle and joint stiffness too.
Hi Kim...I am so sorry u r still going thru so much pain. I know how much u wanted to do , and how limited u r.
Thanks for the info on CRPS.....it is very interesting.
I pray u get some relief from ur pain and that this other dr may be able to help u, AND that it is not MS !
"selma"