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4324711 tn?1464043774

Do I have chiari malformations?

I have been diagnose with a connective tissue disorder and I been having chiari symptoms for awhile now,
Severe Headache and Neck Pain
Dizziness
Vertigo
Ringing in the ears
Difficulty swallowing
Palpitations
Muscle weakness
Impaired fine motor skills
Tinnitus
Chronic fatigue
Painful tingling of the hands and feet
Scoliosis
and tachycardia to name a few, I been to numerous doctors cardiologists, rheumatologist, geneticist, and an orthrepedic surgeon. I been wanting to get the mri, but no doctor has ordered one, I am running out of options the only one that seems to listen is the genecticist and I never heard back from him in a month, oh I do have other diagnosis fibromyalgia, osteoarthritus and vitamin d deficient, being tested for marfans and dysautomia. Any advice would sure help!!!!!!!!!
27 Responses
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4324711 tn?1464043774
No I am tall and hypermobile with long arms and legs.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  SO it is a deff possibility for u to have Marfans.....hmmmm well all I can say is good luck on the dx and I hope u get one soon....

Do keep us posted here on what u find out.
Helpful - 0
4324711 tn?1464043774
Well I am finally going see a nuerosurgon to do a mri, it took long but finally was able to convince my mom I need to get this checked out, its not normal to have headaches everyday or severe neck pain that hurts when you move it.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  I am glad u got ur mom to agree, and I hope u have a NS that can give u a dx and get u to feeling better soon.

  Have a Merry Christmas <3
Helpful - 0
4324711 tn?1464043774
My MRI is today, so today we find out if I have chiari or not.
Helpful - 0
4324711 tn?1464043774
Does my MRI say anything?
Helpful - 0
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