I also found out today that I have EDS Hypomobility syndrome. Will have to do some more research on that one.
Glad all is going well so far with ur visit....we do have a EDS group here and there r videos posted on what EDS is.
I also was dx with the hyper mobile eds and if u have questions I can try to help.
http://www.medhelp.org/forums/Ehlers-Danlos-Syndrome/show/417?controller=forums&action=show&id=417&camp=msc
Me too Nick lol we all could do "circus tricks" as kids...thought it was cool then
Hi.i am glad u have all the testings done and ur eyes are good.i do get u with the mrt.i never was claustrophobic till my symptoms flared up.sounds make me dizzy and mrt also do.i am always sweating the emergency button and just know if i would stop they have to do it again.good luck for everything
Hi.i am glad u have all the testings done and ur eyes are good.i do get u with the mrt.i never was claustrophobic till my symptoms flared up.sounds make me dizzy and mrt also do.i am always sweating the emergency button and just know if i would stop they have to do it again.good luck for everything
You guys are awsome! Thanks for all the support.