I totally understand the frustration. Sometimes my family and even my husband, who gets it more than most, think because I had a good couple of days that everything is fine now! "Hooray, you'll go back to work and be yourself and none of us will have to deal with this anymore!" False. It's hard to explain that a good day isn't a solution. That sometimes a good day means you got out of bed and the prospect of doing things like holding down a job is just too much and not at all possible.
Just breathe and know that you're not alone. I don't know exactly what's wrong with me yet, but I know what it feels like to feel terrible and alone. You're not alone and every day is another chance to do it differently. All we can do is our best. I had a teacher I was close with who always said she lived by "PBUTC" (pronounced pea-but-see), it means "do your Personal Best Under The Circumstances". That's all any of us can do every day. Hopefully your hubs understands the stress you're under. I hope that things get better for you!
You are def not alone. I do the same to my fiance. And when he tries, I feel its just not good enough. I have been stuck in the anger stage for quite some time now. One moment I'm kinda in a good jokin mood and a moment later I'm anngry. My fiance calls everyday a mystery, he wonders which dana he's wakin up to each day. I can't seem to get it under control. I sometime wonder why my fiance puts up with my moodd swings?! He loves me, I know, but I tell myself that I have a hard time living with me, so how can anyone else. So u know these our stages we need to go thru. Hang in there and when you feel this coming on go in a quiet place to relax...
hahahaaa dana...I had a laugh about ur message as i could soooo identify with myself.i lately also told my bf that he has to understand I am cronically tired and I dont know what I will be like in one hour or the next day as he always brings up plans...but I have to say he really learnt how to handle that now and does understand if I tell him we have to go home or I cant join...he really accepts it...its so hard to understand how we feel...even for ourselves...please give it a bit time as he will need time to understand whats going on too...but yes it is frustrating...also all this doctor visits and frustrating news give us mood swings...we do understand u for sure...u r not alone
at least i always kno im not alone when i come on here, he is very supportive but is deff iffy on the surgery and thinks i could hold off on it and again he just doesnt toatally understand yet ya know and he knows lately ive been so angry n mad at everything he always asks me whats wrong when he knows whats wrong he comes to every doc app with me when he can get it off from work and is always here for me thru everything weve been married for one year this comin sept and been together for 10 years since ive been 14 hes my best friend and im not meaning to do it at all i just feel really bad sometimes when hes honestly not doing nothing wrong n i get so upset at him lol, but hopefully it will pass on i guess... thanks for the support ev
Here for you! xoxo, Vent when you need!
I am always thinking.."why" I just dont uderstand...I told my hubby, its just not fair, I had one major surgery in my life (I had open heart surgery at age 14) why do I have to have something that makes me have another...so not fair...but thats my little pitty party!
Big Hugs
Mazie :)
Hi Katie....I know it is hard and sometimes it feels like our emotions take over....
Our family members do try, but this is one very confusing condition in how we r affected, that even Drs do not understand....
We r the ones that have to have patience..with ourselves, our families, our Drs and our symptoms.
And as Mazie said...vent...that way u get ur frustrations out here and save the blowing up at ur family....
Hang in there <3
I feel as if I could of written this post! I'm glad that I'm not the only one going through this but I am also sad that anyone else has to go through all of this!! *hug* to everyone!! I'm so glad I found this place!!
thanks for the support mazi and selma, and yes its nice to always know we unerstand each other on here and are always here for each other actually coming on here keeps me a little more sane when i wanna scream and rip my heart out at times lol! xo hope you all enjoyed your weekend:)