Hiya all !!

[Rahe28]

Hello everyone !! I just wanted you all to know that I woke up thinking of my Chiari family, and hoping that today you all wake up feeling well and symptom free, or as clost to it as possible :) I was researching and ran across tha Chiari walk, and was wondering of anyone here does them. I want to do it this year, providing my health will permit. I have some bow orders that I have to complete before the end of the week, so it is consuming alot of my time right now, and I jsut wanted you all to know that I always have you guys in my thoughts and I am very proud to say that I am a part of this wonderful Chiari family.I am not glad for the reason that has brought us all here, but since we were(most of us) born with this, I say it was meant for us to meet. Anyway, didnt mean to ramble so much, just wanted to let you all know I was thinking of you.

[cash242]

I am having better week think I had reaction to steroid in nerve block last week...not good but back to normal pain..i did the chiari walk in denver it was a very liberating experience, had almost 15 people join me and met fellow chiarians from all over. Hope everyone had a great tomorrow am blessed to have you all...this is the glue that holds me together!

[katie162]

thanks so much of thinking of all of us!.....today i had an ok day right not feeling kind of crappy but it comes and goes.....but i do take th good with the bad everyday chairi is a struggle for me and im sure for all of you we go to bed n wish we went back to being normal again or even for a day for me! I just wanted t o say thanks to the ones that talk to me and give me info i didnt know and help me im so very new to this and scared as well all are but just thankful ive came across this website and seen im not alone and i feel like i can vent and ask questions the many i do have....sorry if i bother anyone on here with the questions i ask lol like ive said im new to this and dont understand all of  it yet i find new things out everyday and just hoping this battle will get better for myself and all of you...well i hope everyone had a good pain symptom free day today! remember when life looks us in the eyes and tells you "you cant" god is holding your hand telling you "you can" god bless everyone have a great night

[selmaS]

  Lovely to see so many positives : )

  

[linnielou232]

Yes I'm from Muskegon Mi.  I would like to find out more about this.  Do you have any more info or where I should go to find it?  Thanks so much

[irislita]

Hope u had a wonderful day.i was also having a quite long walk with my jerking legs...its so good to be outside...i am curious about the dress of ur sweet daughter...girl u seem to have golden hands!!! Big hug

[Mazie1209]

Linnielou, you are frm mi right? There are 3 diff sights on mi that do the walk in sept! Depending on location. :)

[Rahe28]

Linnielou....
I do make hair bows, and just recently started designed my own chiari ribbon for hair bows and pins to wear on your shirt. I am making my first chiari awareness dress for my daughter today. If i cdan find the time, I willupload a picture of some of my ribbons. Glad to see that you are khaving a good day.
Juggle, I am so sorry to hear that  you are not feeling well. It is a beautiful  day here in NEw Orleans..72 degrees and sunny with a slight breeze !!!! I am probably going to regret being out all day .....but it is too beautiful to stay inside ! Have a great day !

[linnielou232]

Thank you so much and for me it is a YES today I got up to have a better day.  I wish the same for all of you.  We take the good with the bad, but of course we all want more of the good in our lives.  Wanted to ask.  What do you mean by ribbon orders?  Also where is the Chairian walk.  I have never heard of this.  If you do ribbons I would be interested in getting one.  
Enjoy your day, and thank you for your uplifting word this morning.
Linda :)

[jiggle93]

Agreed! God willed for our paths to intersect into a beautiful family!
I have looked into the Chiari walk in Az. I talked to Amy and her mom about it. But it also looks like A LOT of work to organize! Pretty sure I am not able to do this on my own anymore like the 'good ole days.  
Having weather changes over here, so Chiari is not behaving this week :/
Your words and thoughts are such a blessing. Hoping your day is going great. Good luck on your project!
Jiggle