Sorry to hear about your accident, pain, & troubles with this as well! The more stories I hear of the more frustrated I get, I don't understand why drs have such a hard time with saying that Chiari is worsened by an accident etc. Its certainly not on every Chiari page, but I have found quite a few that state that. Seems to be relativiley new though that this is being acknowledged. Hopefully we can all help each other with our experiences & struggles.
I looked into my local brain injury assoc. per your recommendation. They got back to me quickly and said she is not a dr but wondered if I might have suffered a concussion as well as rest and will send me info. They don't have any familiarity with Chiari at all though. I email you a page of links gathered so far too.
I had already been diagnoised and having symptems when I was in a MVA in Feb of this year. I hit a car who ran a stop sign and it most definately made everything worse for me ...... and the worst part is due to the whip lash the doctor who was going to book the surgery had to post pone it because he would not cut into my neck like that (ok I am sure that was a good call but holly hell I hurt) I am seeing another doctor a few hours away on Monday and hope to have better luck.
Also I am so far not able to have a specialist put down that it is worse due to the MVA but do have a letter saying the surgery had to be put off because of it so fingers crossed that is a start for the law suit.
to dyinginpain,
i mentioned the brain injury association alot, they are located in many states. the have a list of attorneys who specialise in head injury cases. it's the doctors who will not put in documention that it is caused by a head trauma. there is little known about this. i have a well known ns who did surgery on my c-5 and he put in a letter "it was not there when he did surgery 8 yrs earlier." he did a mylogram and he went all the way up.so if it was there it would have. i dont understand why it can't be caused my a head injury.obviously it is when a child is born. it says it's caused by going through the birth canal. if that's not a head trauma !!! lol when i first looked into this itwas said it could be caused by a head trauma, now i can't find it any where. if you find anything please let me know and i the same for you
For my case, I have been compiling all the links I can find that say anything about chiari being caused or symptoms being caused by an accident. I will bring to my attorneys. I have one for my Work comp case-started when hit on head at work. And one to MVA attorney-pain totally intensified when rearended 4 months ago, I would definitely like others going through the same thing to keep in touch and maybe we can help each other with this battle of proof!!!
My doctor said that she believes I was born with Chiari. Although I've had back problems for as long as I can remember and had migraines for the last 14 years, I've only had severe neck and upper back problems for the last two years - ever since I slipped and fell in my kitchen. That's when I really believe the Chiari symptoms were set in motion.