Hi and welcome to the Chiari forum.
Did you get copies of the CT scans and the reports? If not, contact the facility the studies were done and request copies of ALL testing and reports....going forward always get the reports and copies as this will assist you to get the answers you need.
Not having a DX as of yet there is no way we can comment as to what may be going on......the symptoms can indicate so many different issues/conditions but more info is needed for your Drs to be able to offer the best treatment.