Hello,
I was just interested in what type of doctor could manage all of my symptoms. I went to TCI in April 2009 and they were wonderful, but I am now home and the doctors around here just don't understand chiari and can't put it all together. My neuro has me on Elavil 30 mg at night and wants to start me on Topamax for migraines, but are they migraines? The triptans didn't help much and caused head pressure and palpitations. I take lortab that my pcp gives me, but know they don't want me on that for long, but what else can I do? more than 2 ibuprofens causes my asthma to act up, so i'm at a loss. I get headaches almost daily now and the neck pain triggers them i think. At TCI the doctor triggered the pain by putting pressure on my head and I also have only one vetebral artery that is functioning so that is putting a lot of pressure on the one side of the brain stem. Anyways, I don't feel well most of the time and was interested in what the group though. I'm having arthritis or tendonitissymptoms in my elbows and wrists now to the point its difficult to do things sometimes. I'm going to an ortho for f/u next week, but here we go another doctor. I need advice and you are all so supportive, I"m interested in what you think.
Take care