JUST DIAGNOSED WITH CHIARI I

[ALLMIXEDUPGIRL]

HELLO,
I HAD A CT SCAN OF MY HEAD BECAUSE I FELT MY SINUSES WERE GIVING ME ALL MY HEADACHES, HEAD PRESSURE, DIZZINESS AND EAR PAIN.  ALSO, I HAVE INTERMITTENT NUMBNESS  AND COLDNESS IN MY TOES AND FINGERS AS WELL AS CONSTANT NECK PAIN.  AT ANY RATE, MY DOCTOR JUST TOLD ME I HAVE SEVERE CEREBELLAR TONSILAR HERNATION UP TO 18MM BELOW THE FORAMEN MAGNUM/ C1-C2 ARTICULATION.  I LIVE IN THE BOSTON AREA/ CAPE COD MA AREA. CAN ANYONE POINT ME TO A SPECIALIST IN THIS CHIARI MALFORMATION?
THANKS

[Stephiec79]

I see Dr. Coumans at Massachusetts General Hospital
617-726-3511
15 Parkman St
Boston, Ma 02114

I really like him!!!!

Good luck!

[selmaS]

Hi and welcome to the Chiari forum.

We have a list of Drs, there may or may not be a dr u like in ur area, but do use the list to research drs and  know it is not a referral.

http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1503562

I do believe there is a good chiari Dr in Boston.....please keep us posted on ur Dr search.

  "selma"