I haven't come across the thread yet, but it's nice to know that other people go through this in a way.. only to know, i guess at least i'm not alone with this ...
NS did the shunt because symptoms were slowly getting worst. He doesn't know if it will help, so far it seems to just have added to my pain and added more symptoms. I am so very unimpressed with this whole thing.. makes a once happy, bouncy, always working person just want to Scream, and yet who would i scream at and what would it help or change......Life is Great, just having to many crappy days, at least i can be thankful i'm still here to try n find a solution.
We have a thread somewhere here like this...we all do it, yet we all do not have hydrocephalus...so it leads me to wonder if it is just the compression and pressure on the brain stem itself that is causing the issue.
That could be y the Drs do not want to pigeon hole the symptoms to one condition, plus they do not have a clue I am sure what all we deal with...too many do not recognize half the symptoms we deal with on a daily basis...they have a short list of symptoms for chiari while we have a manefesto.....