Might look at a different procedure. Doctors outside the usa have different theories on the real cause of chiari. Makes much more sense thas hacking out parts of your skull. Decompression doesnt work.
http://institutchiaribcn.com/en/diseases-we-treat/arnold-chiari-syndrome/
Hi...just a FYI sometimes it can appear that a herniation has increased when in fact it may be due to how the slice was taken during the 2nd MRI...looking from a different angle can make it appear to grow or even shrink.!!!
SO do not be too upset over this...unless she has had a change in symptoms it should not be too much to worry over at this point.
Having the right Dr is KEY! and making sure they are a true Chiari specialist testing for related conditions as well as non related and taking precautions with those found....ie- EDS.
Hi Levine38 and welcome to the Chiari forum.
Chiari can and does come with other related conditions Syringomyelia is just one of them...and many have GI issues but it can be an indication of another related condition Ehlers-Danlos Syndrome....
Best bet is find a true Chiari specialist.....as they know which related conditions may be affecting her.....as for waiting when she already has a syrinx....surgery should help the syrinx shrink,,,,untreated it could lead to perm nerve damage....
We do have a list of Drs here and you may have to travel....keep in mind the list is not a referral nor an endorsement for those listed.....our list was compiled by the members here of Drs they have been to, treated by and liked....so research them, compare a few and see who is right for your wife.
CALIFORNIA
Dr. Langston Holly
Dr. Ulrich Batzdorf
UCLA, Westwood, CA
UCLA/Santa Monica Medical Center
Paul S. Jackson, M.D., Ph.D.
Palo Alto Center
795 El Camino Real
Level 3, Lee Building
Palo Alto, California 94301
(650) 853-2919
Dr. Jorge Lazareff, MD
Ronald Reagan UCLA Medical Center
200 Medical Plaza, Suites 140
Peter Morton Medical Build
Los Angeles, CA
(310)794-7700 Patient appoint.
Dr. Samuel F. Ciricillo
2800 L Street $5
Sacramento, CA
916-454-6850
TEXAS
Dr. Jeremy Denning
Dr. Richard Jackson
Dallas Neurosurgical and Spine Associates
Presbyterian Hospital of Dallas,
Professional Building III,
Suite 220,
8230 Walnut Hill Lane,
Dallas, Texas 75231
Phone: 214-750-364
Victor Kareh, MD
Neurosurgery, Spine Surgery
21216 Northwest Freeway
Suite 230
Cypress, TX 77429
281-640-2121
Gulf Coast Brain & Spine Institue
Dr. Peter J. Yeh, MD, FACS
Board Certified Neurological Surgeon
6565 West Loop South, Ste. 450
Houston, TX 77401
713.661.8900
713.661.5535 fax
Dr. David Jimenez
UT San Antonio Health Sciences Center
7703 Floyd Curl Dr. (MC 7843)
Medical School Building, 102F
210-567-5625 • FAX 210-567-6066
Adults and Pediatrics
San Antonio , TX 78229-3900
Dr Dong H. Kim
Mischner Neuroscience Associates
6400 Fannin Suite 2800
Huston, TX
713-704-7100
Dr. Rob Parrish
Methodist Hospital
Huston, TX