There is a Chiari specialist....
IOWA
Dr Arnold Menzes
200 Hawkins Drive
Iowa City, IA 52242
Sounds like you could have ICP ...do let us know what you find out....sending prayers your way <3
Thanks! Confirms what another friend said. Any neurologists for good follow up. They seem like a needle in a haystack anymore!
Head pressure seems to be the ongoing complaint. No one listened. It took a an eye exam with black and white results to confirm my complaints!
Sad when doctors can't listen to their patients. Something that many chiari patients battle with.
Dr.'s not listening....I'm too in the depths of it. So disheartening. Most luck to you!
B4 you go and get a DX look into the dura patch you had placed and if you have EDS as a rejection of the patch can mimic symptoms of ICP..
I hear you on the Drs not listening....they act all knowing and are offended if the patient knows something they do not....but with that type of mentality we need to know what is going on and what these conditions can do, to keep track of how our Dr handles it all for us...
Good luck and keep us posted on what you find out.