Aa
Ok I went insane
I emailed Dr. Heiss about my diagnosis and the kienbocks in hopes to get him interested in my case. It worked sorta. He sent my info to the nurse and she gave me info on a clinical trial that starts in June. I just wish it was sooner. Who else has seen Heiss?
http://clinicaltrials.gov/ct2/show/NCT01150708?term=syringomyelia&rank=3
You need to send the most recent mri report and cds and write a brief of your symptoms to
John D. Heiss, M.D.
Head, Clinical Unit
Surgical Neurology Branch
National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health (NIH)
10 Center Drive, Room 3D20
Bethesda, MD 20892-1414
Office: 301-496-2921
Fax: 301-480-1615
I'm still waiting for my mri's to get there. The nurse promised to tell me when she gets them though.
You need to send the most recent mri report and cds and write a brief of your symptoms to
John D. Heiss, M.D.
Head, Clinical Unit
Surgical Neurology Branch
National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health (NIH)
10 Center Drive, Room 3D20
Bethesda, MD 20892-1414
Office: 301-496-2921
Fax: 301-480-1615
I'm still waiting for my mri's to get there. The nurse promised to tell me when she gets them though.
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