Chiari Malformation Tethered Cord

[maria51]

Hi

My 8 year old grandson may have CM TC.  The doctor told my son and daughter in law that he needs an MRI to determine if he does.  He has some of the symptoms like head aches, urinary incontinence, an etc.

The doctor told us that he will need surgery.  How do we find a doctor who specializes in this CM TC in Texas? We want to be sure he gets the best treatment. Any suggestions?

Mari

[frankie_rush]

I do have tether cord also.  I have had the surgery. I am doing great. Just make sure since this age that the teachers know if he ask to go to let him.  Far as headaches I usually take a Advil and they go away.  I do have some that it might take to rounds to get them gone.



http://www.medhelp.org/tags/health_page/39830/neurological-disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA?hp_id=1062

[selmaS]

  Hi and welcome to the Chiari forum.

As Frankie mentioned do make sure his teachers at school understand when he asks to go, that it could be a problem....so they do not tell him no,....'

and the link he provided is a list compiled by the members here,...it is not meant as a referral nor an endorsement of those listed on it, only that a member here was treated by, and liked the Dr....also not all NS's treat children so you will have to call and ask that as well....

Most of us do have to travel to get to a specialist that is right for us, so do look outside of TX if needed.....