I feel terrible. :-(

[bookworm79]

Not Chiari related but wanted to vent where people don't mind.  :-)  I've been having pain in my left side, upper left side, moved into my back etc. and have had a yellow roof of my mouth for several weeks but so didn't want to go to another doctor.  So it got much much worse and I feel like I really can't eat.  So I went to the ER last night and doing a physical exam he said I had a "markedly enlarged" spleen.  He did blood work and cat scan with IV etc because they didn't have an ultrasound available to them there.  He said my bloodwork came back "mostly ok" but didn't elaborate and kept talking and I forgot to ask what the meant.  He said my spleen was in the "upper range of normal and that it was hardened some."  He said that your spleen should be jello like and mine is a little harder.  He said they didn't see any tumors or anything, which I wasn't thinking of, and that he thinks I need ultrasound and more workup.  He said it could be something as simple as hereditary where the blood vessels are so small and make it hardened.  But if that was the case, why am I just now having pain and "feeling" the spleen.  He also said he would say it's possible I have a milk allergy but it's rare so he couldn't say for sure.  I thought, "I don't drink milk.  I have soy and this and that."  But then when I got home, the drink I drink for breakfast every morning - Ensure - has milk protein.  I knew it was gluten free and all that and I thought it was milk/animal free.  Wrong.  So if I do have a milk allergy, I was feeding it to myself every morning.  I just dread having to schedule more appointments, more time off work.  I know it has to be checked out.  I asked him if my diet or activity caused it and he said no.  He said a toxin had to have but doesn't look like I have mono or hepatitis.  So more doctors, more tests, blah.  I'm so tired of it.  

[bookworm79]

Oh yes, feeling you on the medical bills.  My husband walked in and named off the amounts on all 3 I got in today's mail.  I can't believe how much I've paid but at the same time, I'm thankful I can afford the insurance I have.  I believe I am the only person in my family who has insurance.  Everyone else either 1 doesn't have any or 2 is older and on government medical care.  I got one the other day....$2,000.  I almost died but then saw that they didn't bill my insurance because somehow it never got on file.  I called them and gave them the info, they rebilled and it took it down to about $300 thank god.  

[linnielou232]

I hope you find your answer's and I know how you feel as being a pin cushion and alway's going to Dr. but you need to find the problem otherwise it will just get worse.  I have the roof of my mouth that get's raw and hurt's awful.  It will flare up and I know how you feel when you don't feel like eating.  I hope you find your answer's.  I know how flustrating it is.  I feel bad every day this week I go get the mail and there is another medical bill.  We have to do what we have to do to help ourselves.  Seek and you will find answer's.

[bookworm79]

Thanks ladies.  I'm just keeping clean, making things cleaner, taking my antibiotics, vitamin c drops and haven't been able to eat much but just having a shower and waiting it out feels better than I did 24 hours ago.  Though my waist size has grown 2 inches in last 48 hours despite barely eating last 3 days.  So I'm guessing there really is inflammation somewhere.  Hopefully find out this week or it goes away.

[megthp]

I'm so sorry, and empathetic. My brain is not coming up with any sage words of advice or kind words that will make this any easier for you.  All I can say is I'm sorry you have to go through it and I hope they find a simple solution and things get better for you.

Hugs

[selmaS]

Not just having surgery can do this....it is like a domino effect....and we feel like we r drowning is medical issues and do not want to deal with one more....
and I know surgery is not on the top of neones list, and it is a reason I am dragging my feet, but, that does not solve nething, in fact things can get worse....so, what I am trying to say is, I know we  have a lot to deal with, and I know it is easier to ignore it while we can, but can it get better if we ignore it...I am finding in my case, no.....and I just want to caution all of us, when we have new issues, not to wait, but seek medical help.

[bookworm79]

I haven't had surgery and hopefully won't but if I have this many issues, god forbid I have surgery, because all I keep thinking is I'll then have a million more.  They blew out one of my veins or whatever last night and had them in me in 3 different places.  When I came home I was bruised, blood pin pricks....I looked like a junkie.  LOL  - not funny but is...gotta force myself to laugh.

[selmaS]

  Sorry to hear about all this, I know it is hard to keep going to Drs, we feel like test dummies and  pin cushions and all we want to do is move on and away from Drs...but, we can not.... having surgery can weaken our system....and make sleeping issues wake up.......

I need to take my own advice...and get to a Dr too!!

   "selma"