New doctor. He was very nice

[lu7997]

Thank u Selma for the referal to dr prevedello.   He was very very nice.   He doesn't think my chiari is causing any of my problems as it is small but he feels I have PTC.  And a shunt should be all I need.  I really don't care what is wrong as long as it gets fixed.   And a shunt is a much easier procedure so I am happy.  

He is also going to do flow studies and another LP.  Same as dr Di he doesn't want fluid removed just an opening pressure.  So so far he has been wonderful.  I actually go back in 2 weeks.  So much quicker than I am used to.  


This is the best news inhave heard.  Help is only a few months away.  

[niki3350]

Ditto from me too, im on the rollercoaster again but hey I seem to have a Senior NL now verses a CM NS who are disagreeing.

NL thinks not cm and possibly 1/ neuro issure yet to manifest 2/ a rare disorder (cant remember name) or 3/ stomatization disorder. (basically meaning im nuts in the head)

But without you guys I could not carry on but am close to giving up now if my appointment monday is conflicting again then im throwing the towel in, over 3 years and looking back it has been 11 years with no real answers is enough.  I cant do this anymore.

Seems to me that England and Canada really get the brunt of the ignorant medics who just dont listen and want to label us mad.

Niki x x x

[*Stormy*]

That's so sweet and ditto for me too....that is what I was thinking today is that when other people or Doctors give up on us we always know that this forum will NOT!! It is truly a blessing  to have and I am eternally grateful as well :)

((HUGS))
*Stormy*

[lu7997]

I just have to thank u again.   I would have never thought to use him just because he isn't listed as a chiari doc.   He really did know his stuff.  And with such a small chiari I barely qualify to be a chiari sufferer but I have been. And to finally have one willing to help even though it isn't focusing on the chiari it is going to relieve symptoms and if not I am at least one step closer.    Two years with doc after doc passing me back and forth.  All agreeing something is wrong. Not agreeing on what though and NO one helping I wa really giving up.  


I just can't thank everyone enough for all their support and tips and help.  Small town small state rare conditions never get help.  But thanks to all of u I am so close to relief I could dance (if it still wouldn't hurt so damn bad lol).  

Love u all words just can't express how much u have all saved my life, family, and me.  Love you

[selmaS]

  Ang I am sooooooooo glad u saw this dr and that he is able to help u...and that u r comfortable with him : )
That is the most important after finding one that is a chiari specialist, u need one u r comfortable with as well,

I am also glad u got a dx and a course of treatment planned out.

Please keep us posted after ur next visit : )

  "selma"

[dkdean]

I am now seeing Dr P too :)  I really like him and he knows his stuff!!!!  Glad you had a good appt and that relief is not too far away!!!

[*Stormy*]

So glad to hear that you are getting somewhere...sometimes a caring, helpful specialist is all it takes!!

Keep us posted on what happens when you see him again!

*Stormy*

[niki3350]

Congrats on a satisfying appointment Honey.

Hoping and praying that they get you sorted asap and you can begin to enjoy your life again.

Keep us posted on your next appointment.

Hugs
Niki x x x