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Syringomyelia

Does anyone know of a chiari / Syringomyelia Dr. In Mississippi. I do have 2 Syrinx's...don't know about chiari ,but my MRI looks like it to me. My neurosurgeon just ignores most of what I say....and has told me things I have discovered to actually be wrong, so it's obvious he don't know much, just continue to see him so he can order the yearly MRI's.
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

  We do have a list of Drs and as Lottida mentioned many of us do need to travel sometimes out of state to get to a true Chiari specialist....you will want one that is well informed and experienced with Chiari and Syringomyelia.

If you want additional options to the one above let me know.
We encourage you  to educate yourself on the condition and related conditions as well as the Drs that treat is...having the right Dr is key !
Helpful - 0
12573102 tn?1431701617
Hi & sorry to hear that you have Syringomyelia.  What area of Mississippi do you live??  I am from Louisiana & had my surgery done in Baton Rouge.  I know of another surgeon in Houma, LA that is very knowledgeable of Chiari as well due to his sister has Chiari.  I can say from experience that Dr. Soleau in Baton Rouge is excellent, but do know of several people that have had surgery by Dr. McCallister in Houma.   Dr. Soleau also recently did surgery on Bamagirl40 & she is from Alabama (drove to Baton Rouge to be treated by a specialist).......I'm sure she can give you insight as well.  Haven't really heard of anyone in Mississippi.   Many of us have to drive to get to a Chiari specialist.   It would be in your best interest to find a Chiari specialist & bring all of your past/current records with you.  If you are unable to find a NS close by, you can always call the Chiari Institute & send your records to be reviewed (may charge a fee tho).    Good luck & hope you find a NS near you :-)  
Helpful - 0
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