Your best bet is to contact one of those Drs as they can refer you to a NL as they do work with them and they should also be able to help you locate the upright MRI.
I am thinking we should start listing NL's that have experience with Chiari....I never found one in my area....my PCP did all he could to learn what he could to help me in addition to talking with the NS's I choose to work with.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.