Hi and welcome to the Chiari forum.
How long since u had ur decompression surgery?It is possible to have perm nerve damage as surgery is not a cure, but a means to restore flow and slow progression.
And have u ruled out related conditions and issues including post op issues?
And what all was done during ur surgery? did u have a laminectoimy, duraplasty?......
I had a decompression four years ago. My neurosurgeon left the Chicago
Institute of Neurology and Neurosurgery (I think they were at 5100 North
Damon)and it appears they have merged with another hospital. My fine motor
skills are terrible. I get dropping episodes when I walk the dog, go shopping
or read the words of a song being played. I can only type in a recliner with
the desktop level with my face. I am in a terrible state. Could anyone tell
me a neurologist or neurosurgeon in the Chicago area? I know that they ask for
the notes, paperwork and MRI from 2007, but I can not look down and find them in
my legal box of papers. It is that bad. I wonder if there is an obstruction
that a Dr. discovered from a spinal fluid flow test. That seems a good start
with an MRI. Please any suggestion is welcome.
Can u explain ur dropping episodes...do u just get weak in ur legs, dizzy, or do u just collapse? Are u aware u r falling?
Do u know if ur decompression was a complete PFD with lamenectomy and duraplasty?
Were u checked for related issues like ICP, POTS,Ehlers-Danlos, cervio cranial instability.....
Can u get a new MRI as u have new issues?