Am I allowed to post an MRI in here? Need HELP for my 7 yr old

[bekah0656]

Hi,I was diagnosed with Chiari and am scheduled for decompression November 10th. Mine was caused by a rollover car accident. I was not born with it. My 7 year old was also involved in the auto accident,she was only 2 at the time,but the vehicle we were in rolled 2 and 1/2 times. She had occasional headaches after,I thought maybe it was whiplash,so she has seen a Chiropractor since. She had an MRI done and I was told it was normal,however,it does not look normal to me. I do not think it is a full Chiari1,but I am wondering if it would be chiari0? I was diagnosed with Chiari0 But with neurological examination,she said it was clear my brainstem is compressed and Cerebullar fluid cannot get through. My cerebal tonsils are herniated 3mm. Is there anyone that knows how to read MRI's that can take a look at it for me? I dont want to be over worried. I posted it in a Chiari site,and others agree that the MRI is not "right". I could use some more opinions. She sees her Pediatrician tomorrow for another blood pressure check. The Pediatrician put her on a blood pressure medication in hopes it would help keep her daily (and sometimes twice daily) headaches away. Since she started it a month ago,there has been no improvement :(

[selmaS]

   I  am sure  it is hard  to have  a younger  sister  in class  like  that but  at some  point  they  will  go in  separate  classes.....

My DD took  4  classes  at  that  age....she  was  in Nutcracker then  and  they  had  to go  to rehearsal  which counted  as  a class.....she  will  be  fine....my  DD  also  did well  in school  as  a result (my opinion)  of  the dance  classes.

[bekah0656]

Oops to specify,Kailey didnt start til 4 because when she was younger we lived in an area where the closest studio was 2 hours away. when she was 4 we finally moved where we had a 30 minute drive instead :)

[bekah0656]

I was sad that because of where we lived,we could start our Kailey (the one who takes it seriously) until she turned 4. So it is good that she takes it seriously. The Teacher had her skip a class this year so she is with the girls her age,but the downfall still is that her sister started at 2.5 (they are 19 months apart) and are in the same class. So Kailey struggles with that because her sister doesnt really take it seriously. So I have 1 daughter who is one of the best in the class,and another who is about the middle of the class.
My photos are all up now,I only showed their costume photos because I take crazy amounts of photos and didnt want to just overflow the album,haha!!! My Emma is only taking one class this year,where Kailey is taking 3,next year she wants to add lyrical to it. I'm concerned about her taking 4 classes at the age of 8 but we will see how she does. I'm going to go check out your daughters photos now after I grab my daughter to come see too!

[selmaS]

--Mine-took-it-seriously-too-and-now-teaches-dance.

--Pull-up-my-pics-and-share-with-your-DD-there-are-pics-of-her-in-The-Nutcracker-and-in-a-few-other-types-of-dance-including-tap.....her-leg-is-the-highest-and-straightest-in-the-pic.....I'm-not-too-proud....lol....

--Taking-dance-seriously-did-not-hurt-my-DD-but-she-learned-so-much-like-working-hard-for-the-best-outcome-and-sticking-with-something-.....as-long-as-it-is-her-choice-let-her-do-it-her-way.....mine-asked-to-take-dance-at-2.5-an-never-stopped-wanting-to-do-it-it-took-us-and-her-all-over-the-world.

[bekah0656]

I apologize,I just saw this. This is her 4th year so she has only been in tap,ballet,and Jazz so far. She takes it so seriously that I have to remind her sometimes that she is 7 and I want her to have fun too!
She already talks about getting her pointe shoes even though they are years away. Her favorite style is jazz though,she love the spunk of it. Tap she struggles with the most and since she is so hard on herself,it is her least favorite. This year is where I've noticed the most growth and it made me so proud. I actually heard "Rythm" instead of noise,hehe! I have a 6 year old in dance as well,she does it for fun and doesn't take it seriously,and that is ok. I'll post some photos on my profile in a bit so you can see them.

[selmaS]

   My  DD  is  a  dancer  as  well....she  is  all  grown  and  now  teaches  dance,....so  I  know  how they  are  with  it.,..mine  just  loved  it....

As I mentioned  b4, keep  a journal  of ALL  her  symptoms, and  issues  even if  you  are  not  sure  if it  could  be Chiari  related....track  everything,  what  her  activities  were  and  how  she felt  after...it  may  help drive  your  point  with  the  Drs,....

What  dance  form,  does  your  DD  like  the most?...Ballet, tap, Jazz, hip hop?

[bekah0656]

Thank you Selma,to me,hers looks tighter than mine,but it could just be because she is smaller. It looks tighter compared to the normal MRI. I have printed off her MRI,my MRI,and a normal MRI to bring to her appointment tomorrow. I'm usually a laid back person,but I NEED to push to get a referral to a Neurosurgeon,at least so she can see her and the MRI. I just cannot stand seeing her so uncomfortable. She has loved dance,this is her 4th year,and she is struggling with dance because the activity makes her head hurt. SOMETHING is going on with her,and I refuse to believe that it is just "Pediatric migraines". That is what the Pediatrician diagnosed her with. These are too frequent to just be "Pediatric migraines".

[selmaS]

   Ok...I  took  a  look  and it  looks  congested  for  sure, but  without  a Chiari  specialists  and more  testing  it  is hard to  say....

This  forum  helped  me in the  same  way, and  it's one  reason  I am  still  here....

[bekah0656]

This is the correct MRI,sorry again for the mistake
http://www.medhelp.org/user_photos/show/510522?personal_page_id=312674

Selma,it helps so much to be in Chiari groups! I dont think I would be this calm about it if I didnt have so many awesome people to talk to and answer my questions. :)

[selmaS]

   LOL....and I  commented ,,,,lol...

[bekah0656]

Oh no!!! I posted mine on accident (I swear I'm losing it!) I will get hers on ASAP,I cant find where to delete my comment

[selmaS]

   Yeah, I  just  got  my  tablet  out  for  Nov  and  see  you  are  in  it  already....I also  know  how  nervous  you  feel, I felt  the  same  way....but  would  do  it all  over  again.,,,.

  No  worries   : )

[bekah0656]

This is her MRI, It was a lay down MRI,we do not have CINE anywhere near us. Any help or opinions will be greatly appreciated.
http://www.medhelp.org/user_photos/show/510521?personal_page_id=312674

[bekah0656]

Thank you :) I've already posted my surgery date in the prayer thread. I was so nervous when I posted,but now I'm just thinking "Let DO this!". I'm sure nerves will come back the day before ;)
I understand that you are not professionals,but I do feel that many have gotten pretty good at reading them. My daughters Pediatrician is wonderful,we really do like her! But,many just are not Chiari smart. :(  I will get the photo edited and posted within the next few minutes. Thank you again.

[selmaS]

  BTW-  when  you  post  a  MRI  make  sure your  personal  info  is  not  visible...use  photo shop  to cover  or  delete  that  info  you  do  not  wish  to share... put  the  pics  in  your  profile  page  photo  album  and  include  the  link  here in the  thread....

[selmaS]

   Hi...yes,  you  can  post  your  MRI's  for your  DD, but  we  are  not medical  professionals  and  it  will  only   be  an  opinion....comparing  them  to  our  own  MRI's not  in any  way  to  give  your  DD  a  DX....

  Please  post  your  surgery  date in  the  surgery  date  thread  so  a Prayer  Thread  is  posted  for  you.....wishing  you and  your  DD  all the  best.

[bekah0656]

I'm going to push tomorrow for a referral to my Neurosurgeon,but it would help to be validated and know that I'm not just over worrying and seeing something that is not there,you know?