another day

[deadmemory]

This isn't a question, its a poem I wrote to share with my fellow chiarians.

Another headache, another day. I wish there was another way. Can't sleep, can't think. I don't even want to eat. Another doctor, another face. You I Chiari I hear them say. What is this is ask, your brain is hanging down real low. Another scan to prove its true. Go home, there is nothing more that we can do. The pressure in my head won't go away. I want to cry and now I know why. I go back to the hospital the pain too much to take. Another poke in my lumbar space. The fluid was very cloudy. You must stay the doctor did say. Three days pass I'm still in pain, I guess my stay was all in vain. I felll at home, I feel unsteady. My muscles feel weak, this is looking bleak. I saw my doctor, he does not see, why I am persisting. He sends me home with no relief. I lost control of my bladder so I called my surgeon to see what was the matter. Your herniation is a centimeter in length. Please stop calling me; you're such a bother. I lose hope. Why does it matter? I can not live but I can not die. I find solice in my daughters eyes. Can someone please tell me why. I'm still a person, just like you. She is faking I heard her say. I still have feelings too. But if I may, my tests prove you're wrong. I'm not faking. You are lacking, you don't know about the herniation in my brain that is Chiari. I have to believe, I must pray that there is a doctor who will listen to me one day. I have to believe that the pain will someday go away.

[deadmemory]

thank you everyone.

I am waiting to see my neurologist. I am on the call list if someone cancels their appointment. If not, I see the neurologist on the 28th. I am hoping she will be able to help, but I won't get my hopes up.

[greeneyes247724]

I agree....it was a very good poem and speaks what we feel so much of the time!  And yes...we have to believe that the pain will someday go away!  : )  ::gentle hugs::

[selmaS]

  Thanks for sharing this with us,..very moving. <3

[drewlevas]

I love it, it's a good poeme. Hang in there, were all in the same boat.

[deadmemory]

* you have chiari I hear them say (just to clarify)

[deadmemory]

Several typos at beginning, I apologize. I'm sure that you all don't mind. :)