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Chiari Malformation Community
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chiari malformation

hi all im new to this page have being told i have chiari malformation after mri was done the doc that gave me the results doesnt know much about it so sending me to a specialist he just told me there is  fluid on my spinal cord connecting to the brainstems i dont what else he said because i could not understand half of what he was saying also he said he was writing an urgent letter off to neurosurgen can ant one tell me what the fluid means
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620923 tn?1452915648
COMMUNITY LEADER

Hi and welcome to the Chiari forum.

I am not sure what was meant, bcuz there is fluid that flows down along the spinal cord...but it can fill a pocket and form a cyst like cavity of fluid that can compress the spinal cord and the nerves.....this condition is known as Syringomyelia and the cyst is referred to a syrinx.

Being sent to a specialist means a neurosurgeon (NS) BUT there is a difference btwn a NS and a true Chiari specialist....the Dr needs to be well informed and experienced not only with Chiari but ALL related conditions and Syringomyelia is just one related condition/issue.
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