WEDNESDAY'S WISHES ~~~~2014

[selmaS]

  Hi....today lets post so wishes for yourself, family, friends...whomever you want to share a wish for....

It can be for Chiari itself or EDS....what ever you feel inclined to wish for.......

[rod44]

I wish I could get back to work instead of being a burden. We went from having a reasonably good standard of living to living from hand to mouth. Chiari and the other complications have done this to me. I am grateful to have good support from my family & friends.

[selmaS]

  I wish we had more awareness of this and ALL the related conditions so those DX'd can get the proper help they need and deserve <3

[selmaS]

  Me too....I miss the income I had as well....that has drastically changed my life for sure and looking at ways to create an income from things I can do at home on my time.....

[rod44]

Well you have a talent :) We still have that beautiful scarf you gave AM. Quality work!

[selmaS]

  Aww thanks....I keep thinking how I could have made it differently...could have been better...lol...

[Elisaandbucky]

I wish for more receptivity in insurance companies, which, of course, depends some on public awareness. I wish there could be a foundation to help the many whose insurance companies turn a blind eye to the reality of this thing that affects all of us. I wish that those who have no support - familial and/or monetary - could receive the support, love, and encouragement that we wish for them.

[wonderchiari]

like everyone who says chiari has drastically changed their lives i too feel the same.
They say they  miss their income I too had to quit a high paying banker job to settle for something done from home and obviously there is a lot of difference in income and I have cut down on pampering me and spending on myself a lot.

.As well as I used to feel good when I was doing my earlier job and I used to come across different people and talk to them which sort of freshened me.But now I have do things from computer without personal human interactions.

anyway no regrets ...happened is happened and i always believe things happen as per gods will.

I wish that none in my family for generations or any of chiari sufferers family would  suffer from chiari or associated conditions or any other difficult  conditions.

[selmaS]

  Hi all my wish this week is simple, that my reflux leaves me alone...lol...it has been good for a long time, but with the change of the seasons/temps it is flaring up as always....so I will be playing with meds and watching my diet even more closely.....so I also may be a bit scattered and forget to post things like Tuesday's treasures....sigh....forgive me : )

[baccalynnwv]

We just build a basketball court in front of our garage two months ago. I can't even play now. I wish I could play with my kids. REALLY play. They ask me every day. I can occasionally play just a shooting game like "horse" but not a real fast paced game of half court basketball.

So, I wish I could play basketball with my kids!

[Elisaandbucky]

This week, I wish that the Conquer Chiari Walk Across America was in my town, so local friends could come out to support the walkers. Since there was no walk in Charlotte, I chose to go to Philadelphia to walk on Saturday. My father lives close and is coming with me, but is just wish there would be more friends to support the cause.

[selmaS]

  baccalynnwv - I know what you mean....so difficult to not be able to be as active with our kids....I was never a sports player....as I always felt bad after all the activity....


Elisaandbucky- Me too....sigh...they use to have one near me, in a nearby town, now I have to go an hour and a half  away...when they had them I had just had surgery and could not go, now I think I could handle it and none around here....Philly is where I would have to go, but I no longer Drive and can not get someone to take me that far....have a great time <3

[Elisaandbucky]

I wish I could get the chance to meet you in person. I am walking by myself - my sister and father will be there, but neither is walking. I am going to walk at a very leisurely pace. I am going mainly to be a part of it all.

[selmaS]

  They went along but did not walk?....Sorry, I do not get that....but...eh, I miss a lot of things...

I would love to meet you as well....one day maybe,,,,maybe next yr at the walk...where in Philly was it held?

[selmaS]

  My wish for this week is for all of us to have the energy to get done what needs doing, and a little extra for what we would like to do  : )

[Elisaandbucky]

Hi Selma,
The walk last Saturday was great - the weather was nice, my friend from high school and my closest friend came out, and I got my first purple ribbon pin. Now ll I want is a purple awareness bracelet. The location of the walk was in Ridley Park (beautiful state park) in Delaware county near the Philadelphia airport. Yes, maybe we can go to the 2015 (which is taking place on 9/19/15).

My wish for this week is for courage for those parents who have very young children who suffer from Chiari. there was an 18-month-old baby at the walk who was pushed in her stroller by her mother. The mother was a beautiful lady with lots of optimism.

[selmaS]

  Glad you had nice weather....I was home not able to do much...this change in temps....but it is what I expect with this weather and season changes....

  My DD gave me a purple bracelet for my Birthday and I love it...

I agree, dealing with this myself for myself is one thing, but if my DD had this...sigh...not sure how I could handle it....wishing they can figure out a way to prevent the malformation from occurring, then no one will have to deal with this.

[selmaS]

  Hi all my wish for this week is none of you contract this cold/flu that is going around, be mindful of others sniffling around you..get xtra Vit C into you and wash your hands after you go out and  touch surfaces many others have touched....those of us may feel the symptoms more severely since we have our Chiari symptoms that can flare with these illnesses....so, cold and flu season, ask if anyone is sick where  you plan to go, if so, change your plans...stay home and reschedule for a time when they are better....

[kwalker0004]

My wish for today would be that my boyfriend and I remain safe as we are building his new shed. And I hope to lose this cold very soon and quit sneezing all the time. I wish for everyone is for no one else to get whatever is going around. Its not fun being sick at all.

[selmaS]

   I know how you feel...it is long lasting...and hurts like heck....I haven't had a cold in yrs,,,I pray u get rid of the cold soon...and keep safe building the shed.

[kwalker0004]

So do I. This cold has kicked me hard. So hopefully get over it. And we are safe building this shed. Thank you for the well wishes.

[selmaS]

   I think I  rounded  the  bend  with  this cold....head pressure  seems  to be gone.....still...PND.....sure it is just  a matter of time,...lol...

[selmaS]

   My  wishes this week,,,,are  small,,,that my  DD's Fall Fest Party  turns out  as nice as her  House Warming she had last  yr.

[kwalker0004]

My wish for today is that my brother makes it out of this predicament that he is in. That way he can be home for the holidays!!!

[selmaS]

    My wish  this week.,,,,,is  I get   a new  phone....it's over  a week  with  no   phone  and   was told  the  model  I  want  will be  another  week....ugh....sigh....I  know  it may  not sound like  a  huge thing to  wish for....but it  is difficult to keep in  touch with  people when  you  do not have  a working phone....