elnos dolons syndrome

[nsalem656]

Sorry I don't know how to spell it. It looks like I might have it. My question is does it have a test? I asked my doctor and he said no. I'm double jointed in fingers and legs (except one of my fingers lot a bit of it's rom post two surgeries).

[selmaS]

  We do have a EDS group here on MH with videos with info....do take a look, the videos were made by a Dr that also has EDS.

http://www.medhelp.org/forums/Ehlers-Danlos-Syndrome/show/417?controller=forums&action=show&id=417&camp=msc

[nsalem656]

Thanks. I'll remember that when I go to my second opinion.

[Rylanesmom]

Beighton scale darn ipad

[Rylanesmom]

Ehlers Danlos Syndrome....my NS used the Brighton scale to diagnose me and then did a couple extra tests to ensure it was not vascular.  Typing requires genealogy and sometimes skin biopsy.