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heart problems with chiari
hi everyone,
ive been having heart problems recently, the beat is slow then speeds up, my blood pressure ends up being 204/110, went to hospital, was sent home,
now awaiting a 24hr heart moniter, i get so lightheaded, and weak, heavy, if i take a step of stand, or even roll over in bed, it becomes hard to breath,
I have had this alot, but had never had a BP, or heart listened to while it happened, i dont normally go to doc, but i felt so bad, i decided i should go, which i found interesting as it maked me wonder if this happens every time,
my question is....... Do you get heart and Blood pressure problems with chiari and if there is anything that can help this effect, of relieve it????????
at the moment i seem to have problems one after another. lol
ive been having heart problems recently, the beat is slow then speeds up, my blood pressure ends up being 204/110, went to hospital, was sent home,
now awaiting a 24hr heart moniter, i get so lightheaded, and weak, heavy, if i take a step of stand, or even roll over in bed, it becomes hard to breath,
I have had this alot, but had never had a BP, or heart listened to while it happened, i dont normally go to doc, but i felt so bad, i decided i should go, which i found interesting as it maked me wonder if this happens every time,
my question is....... Do you get heart and Blood pressure problems with chiari and if there is anything that can help this effect, of relieve it????????
at the moment i seem to have problems one after another. lol
I read some news articles on TCI and I had to question wether or not I should try to get myself up there. But news articles are news articles. Anyway I dont know what kind of MRI i had but it did show the malformation with no sign of syrinx withing the portion that was visible. I'm getting another MRI of my spine to determine if I have a syrinx there. I dont know about any of the other things you mentioned. I am trying to get that second opinion and I thank you cause now i know what to ask. I am so glad that I came back to the community. I need as much support as I can get. My family thinks I'm over reacting and that is all in my head...but it literally is lol but they dont see it that way. ..Not even after i showed them my MRI.
COMMUNITY LEADER
I know all that happened at TCI while I was going for my eval and surgery and I am very happy with the drs and the care I received....U also need to look at the rag that printed all of that too !
Plus, most drs do have some patients that r not happy with the results of surgery, but this rag went to the patient and instigated the whole thing than others jumped on and it was blown out of proportion if u ask me.And the issues were not on surgery, but a scheduling issues which was more the Hospital than the TCI drs!
There r several other drs u may be comfortable with like Dr H in WI....??or Dr Oro...?
Well remember there r drs out there that do not understand chiari so we can not expect our families to ....they will have to learn along with us...so invite them to come on here : )
"selma"
Plus, most drs do have some patients that r not happy with the results of surgery, but this rag went to the patient and instigated the whole thing than others jumped on and it was blown out of proportion if u ask me.And the issues were not on surgery, but a scheduling issues which was more the Hospital than the TCI drs!
There r several other drs u may be comfortable with like Dr H in WI....??or Dr Oro...?
Well remember there r drs out there that do not understand chiari so we can not expect our families to ....they will have to learn along with us...so invite them to come on here : )
"selma"
Yea, I know what you're saying. I found it hard to believe that the doctors with such reputation would do something like that. like I said its the paper . you NEVER know. Did the surgery eliviate your symptoms? I know there are many risks, and I have yet to bump into a comment from someone with a bad outcome. But I'm so nervous about getting it done although I know at this point I believe i really need it. I have my children who need me and I might have someone to help me care for them but I'm afraid something will go wrong.
COMMUNITY LEADER
I still have issues, which many of us will, but glad I had it done...so far no syrinx that is a big plus in having it done and I do not have the same symptoms or the degree of them.
I was told I need surgery for tethered cord and a bulging disk causing a CSF disruption...so I still have things going on.
I have not had a drop attack since surgery so there is another plus.....there is no cure, we can get worse after surgery or develop other related issues like pusedotumor cerebri....(IIH)
so finding a dr u r comfortable with is a must and the first thing, then trust what he is advising u to do.
I look at it this way, I did not expect the surgery to eliminate or lessen all of my symptoms bcuz I knew it took 50 yrs to get them all and it can take up wards of 2 yrs to heal ( I heal slowly so could be longer)...I am patient : ) And very pleased with my outcome.
"selma"
I was told I need surgery for tethered cord and a bulging disk causing a CSF disruption...so I still have things going on.
I have not had a drop attack since surgery so there is another plus.....there is no cure, we can get worse after surgery or develop other related issues like pusedotumor cerebri....(IIH)
so finding a dr u r comfortable with is a must and the first thing, then trust what he is advising u to do.
I look at it this way, I did not expect the surgery to eliminate or lessen all of my symptoms bcuz I knew it took 50 yrs to get them all and it can take up wards of 2 yrs to heal ( I heal slowly so could be longer)...I am patient : ) And very pleased with my outcome.
"selma"
You're right. I can't expect for it to fix ALL my issues. But I know it can help elivate them being that all goes well. I will push to find the right surgeon/specialist. I wish there would be enough research so that people wont get misdiagnosed or left out on a limb waiting for a diagnosis. Docs make you feel like you really need the happy pill!
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Now post op, I haven't had any issues to that degree, I actually didn't even think about it now until I read your post. Also, after surgery I found out that I had Hashimotos (auto immune thyroid disease) and sometimes you run from hypo to hyper (which can cause heart racing, breathlessness ect.), so you may want to get that checked out. Or you could be hyper (Grave's disease) in which you most definitely would have those kind of issues. So if you haven't had your thyroid tested, I would do so. I am now getting the Hashi's treated properly so I am wondering if that has helped it for me.
I hope it gets figured out b/c that is a really horrible feeling!
Carolyn