Autoimmune urticaria anyone?

[jbaum27]

Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?

[Hschein]

Try plaquenil, NOTHING else worked for me until then.  I was on low dose of steriods until the plaquenil took effect (1-2 months)!!  I have been on it with very minimal side effects (upset tummy once in awhille)

Good luck!!

[Hschein]

Please let me know if they find something.  I have been suffereing for 14 years!!  I have dreams that I go to the Mayo Clinic and just lay on the floor and tell them I 'm not leaving until they figure it out!!

thank you and I hope you are healed!!

[bluebutterfly6162]

Hi
Just trying to find a Doctor in Australia, preferably Sydney that will do the Xolair injections for my son's Chronic Urticaria as antihistamines don't seem to be working as well as they did. After reading your post thought you may be able to help.

[ladymitzi]

I developed hives about 3 months ago, out of no where... I am autoimmune.. we have tryed everything..  all the allergy meds...nothing works... I'm miserable...... only thing works a bit is predinsone and thats temporary... and for me deadly because I'm diabetic and it raises my sugar for a short time.... anyone have advice.... ***@****  thanks

[DogLover6134]

I put this post earlier but cant find it now

[TheTexasGuy]

Allergist said -- get back on Thyroid medication ASAP.

I'm now on 30ug of Armor Thyroid and nothing else -- stopped the steroids and the rest of the cocktail of drugs.  I have a mild rash once a week, nothing bad (2 Zyrtec and it's gone).  I did get approved for Xolair, but given this improvement, I'll probably pass for now.

Crazy how the Thyroid can affect all of this.