I'm 53 and am on 100 mg. of Topamax daily. I also had thick hair all my life up until about 5 years ago when I was pre-menopausal. I began losing hair slowly and friends started noticing bald spots on top of my head. I was horrified! So I totally relate to all of you ladies!
I was not on Topamax at that time of any other drug that caused this. I know genetically my grandmother and mother had thinning hair later in their lives. Bummer. I also am a type A personality and stress a lot. I didn't eat right. Didn't take many vitamins. Don't get me wrong, but I' ve been seeing a dermatologist for this hair loss for years now. He's done blood tests for everything from thyroid (negative), to lupus (which also can cause hair loss) and nothing but genetic and post-menopausal issues are to blame. It happens with age ladies. I'm trying to take lots of vitamins, like everybody is saying, biotin, prenatal multis, B-6, etc., eat well, protein, get a GOOD haircut and color to accentuate the positive, and do what we can. I'm so sorry for the younger girls, especially. It's hard enough on us ladies who are stuggling when we're a littler older Good luck everybody....
HI ive been taking 75 mg of topamax for over 3 yrs and I had really really thick hair as well and was told my hair loss was due to my 3rd stage kidney disease then when I got diabetes that it was due to that. Now im getting really bad bouts of vertigo was well and I think it due to Topamax as well. So I just emailed my Dr. that I want to get off it ASAP.
This is my third week on Topamax. I read about the side effect of hair loss. I already have fine, thin hair, so I started taking Biotin and Selenium and using Nioxin for thin hair before I started on the Topamax. So far, it has worked and I'm not losing any hair. Maybe you can try that. See if it works for you.
I am also on 100mg. I was also put on it for migraines several months ago. Last week I had one of the worst migraines of my life. Aside from the I cannot focus well on my work, am occasionally aphasic, am forgetful and recently realized my hair is coming out from the roots.
That's it. I have had it. My hair is blonde and baby fine anyway. I can ill afford to lose more.
I have lost 20lbs total slowly. I may not keep it off. But this med is not working well enough to ruin my life. I am going to start backing it down as of today to 50 in the morning and 25mg at night. Then 25mg and 25. Then the last week 25mg only. Then none.
Have you stopped taking the topamax now? Have you noticed your hair falling out? I am on 300 mg a day and my hair is falling out like crazy. I have a bald patch showing in the front. I am devastated! Can't figure it out except for this medication. Let me know please. Thanks!