Hi all,
Checking in with a couple of updates after years of this.
Still the best luck I've had symptomatically is the arnica/menthol gel.
I had a neck X-ray done and it was normal.
I went to the neurologist today. My general exam there was normal. He is sending me for nerve testing. He said if that is normal he will probably send me for an MRI in case there is something the X-ray missed.
For now, the gel, Tylenol PM to get me through the night, and xanax for when it gets so bad I'm losing my mind.
I will update after my nerve testing. Hang in there!!
Try mirtazapine, helped my dad for chronic but undiagnosed pruritis. Some research says it blocks pain/itch receptors in the brain.
I was so excited that the lidocaine patches worked for two nights, without cyclovir in between them, and then last night I was up after a few hours and had to reach into the mini freezer I Sadly keep in my room with ice packs. I, too, have wanted to offer myself up for research. Neurologist appointment I sent in January, and I’ve had this for at least 11years with my sleep being interjpted constantly since spring. Sleep deprivstion is a problem in itself. Im going to try acupuncture again. Im on 300 mg gabapentin (which completely erase delete the itching for one month) and haven’t been even able able to increase because it’s so sedating, and I have to drive and work. Typing on this site is really frustrating—it adds words...
I'm a 59yr old female,I first had my first lightening strike attack of intense burning,itching arms at age 23.Sadly it persisted until age 50.Many doctors visits,some who told me it was all in the mind !! Anyway,the itch left me as suddenly as it came,after more than 30yrs suffering.I now have neurological symptoms,no coincidence I believe.If any neurologist is interested in a study on this mystery condition,I am offering my experience as a study.
Just rubbed a harabinero all over my itchy arm nothing not doing anything . Itching like mad 20 minutes later.
I've had BP for over 12 years. I am so glad to hear that I am not alone. People tend to think it's all in your head. I don't want to take any daily medication. Ice is the only thing that really helps me but I sometimes use Sarna lotion or Icy Hot. After reading through every single post on here I'm headed to the store to buy Clorox wipes and Caress soap. I have very poor posture and feel there is definitely a connection there so will start to correct that as of right now. Good luck everyone, this is a maddening infliction!