Forgot to mention I did take methotrexate (sp?) and it made it worse.
I was wondering if you have any successful treatments since your post? My bf is suffering from the same thing and he has tried all the same treatments and lupus diagnosis. Now the dermatologist wants to the let the rash run its course because he doesn't want to continue to prescribe prednisone anymore.
No. It's been more aggressive now and comes up on 20 mg of prednisone. They are sending me to a research hospital now either duke or Johns Hopkins because none of the doctors here know what to do with me. We are waiting to hear back from the nih about a program they are running but no successful treatment so far for me.
That story sounds all to familiar. The doctor just increased him to 60mg of prednisone and started him on lupis meds but new outbreaks are still occurring. He has also suggested going to a research hospital or clinical trials but we don't have any around our area yet. I was reading some other posts and someone had success with Citrus Bioflavanoid pills. We just bought some. Anything is worth a shot. Hopefully there is an answer to this. It is so draining physically and mentally.
I was wondering if you have any successful treatments. I have been suffering same as you with persistent EM since 8 years straight. The only that works is prednisone. I tried all immune suppressed drugs, but nothing works. If you did find please help me.
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Ive been suffering from facial lesions w/o any explanation from medical drs nor help. I can say colloidal silver works well. I apply and cover w a transdermal dressing (without padding) and leave it there as long as I can. I can say if my lesions are dry they won’t heal. My skin seems to heal much better when moist. It also scars much less. Also acupuncture and EPRT therapy is good on the holistic level. No drugs just a boost of your own body’s healing mechanisms. If you can find a provider I highly suggest either or both homeopathic therapies. A friend of mine had immunodeficiency and Lyme diseases as a child. No dr could figure out what was wrong w her. Her mother got tired of the practitioners when they over medicated her child so much her liver failed. She got certified for an EPRT machine herself and her daughter is now a 30 year old healthy woman never having tested positive for Lyme since. Her kidneys and liver also healed. Good luck.