Is there help out there?

[kraysmom]

Most of you have probably seen some of my concerns posted in the past about my 16 year old daughter with brittle diabetes.  We have an awesome specialist in Nashville, TN but are still having a terrible time getting her straightened out.  She was also diagnosed with having "Pituitary Suppression" and as having the insulin binding antibodies which make it very difficult to get her sugars leveled off.  She is on the new insulin, Apidra, that is working well but the other issue still effects her sugars and cause her to go into DKA very rapidly.  Her MRI showed a 1.5 mm microadenom that doesn't really concerned the doctors right now but with the problems she is having, everything I have read says the Pituitary gland is the main gland that is involved. My gut feeling tells me to have this checked out even further but I hate to go to another doctor as we have seen 4 specialist in the past and the one we have now is the one that found these problems and I trust her.  My daughter also has problems with her menstrual cycle and this too could be a result of her diagnoses.  No hormone pill that she has been on has helped at all.  I am willing to take her somewhere for tests if someone can find out something.  Let me know if anyone has any suggestions.  I am afraid that if we don't get her healthy we will lose her way too soon. Thank you so much!  I really am losing my mind......

[DennisIDDM]

Have you tried?

> Looking up The Best Hospitals & Dr.s  per medical Condition
Business Week runs it every yr.. and thru your Library and On Internet

>Universities... speicalize in certain Reserach and Treatments

> Joslin in Boston.. for Diabetes


Hope this helps

[JDRF-VOL-RL]

Hello.  I'm not a medical professional, just the parent of a kid with diabetes.  I don't really have anything to suggest to you other than to follow your instincts.  No one knows your child like you do, and if you think there is an avenue to take which may allow you to discover what's going on, you should take it.  That's what I would do.  Good luck.