Child with Down syndrome and behavior issues

[kathy1963]

My 7 year old son has Down syndrome.  He is a joy to be with.  He does have impulsive behavior.  His behavior isn't always impulsive, but when he is, he is uncontrollable.  Has anyone had any success in diet or natural medicines to help with impulsive behavior?  An MD prescribed risperdal for him, but we don't feel comfortable giving an antipsychotic med to a 7 yr. old.

[Skic]

I do not use the nutrivene any longer. Mostly due to finances. I have several other things that I use that are seemingly or more benefit to him. I like the Nurtivene and would continue to use it, but with it's cost (which is not unreasonable) coupled with cost of everything else and tough economic times it's hard to pay for so many thing. I would push throught the expense though if I had seen any difference from it's use. Used it for several months with no visable results. The company is very reputable and the main fella will talk to you and has good info on down's kids. Has one himself if I remember correctly. I'm sure from a nutrional point it is a great product because it is packed with good stuff and safe. Just had to choose and went with the things that seemed to have at least some affect. For me it is dietary, lots of water, elimnate sugar, use quality products like organice coconut oil 3 tsp 3 X a day, apple cider vinegar tblsp in glass of water. Elimnate toxins much as possible, (safe soap, shampoo, no flouride toothpaste), Vitamin B12 and D spray under tongue twice daily, Ashwagandha ( herb that helps with brain function) and supplement with Spirulina  6 tabs once a day with food and lastly a nutrional product from Halleluah Acres (ONline) which is called "Barleymax". It is a green superfood product you put tsp in water. Has great healing properties.
. This combination with diet, no junk food or drinks has given me some visable result. Also found on Natural news.com's store and porduct called "Oxy Powder" that takes place of toxic Polyethylene glycol quite well and safely.
Hope this helps.

[tati591]

did the nutrivene work for your son? Is he still taking it, can anyone shed a light on this high dose vitamin?

[tati591]

did the nutrivene work for your son? Is he still taking it, can anyone shed a light on this high dose vitamin?

[Skic]

I am actually replying to myself. I have just found information that could prove valuable to anyone here that has been dealing with extreme behavioral issues. The use of Polyethylene Glycol (under a poplar brand name which I will not mention but sure all what it is) has been known to cause major issues with many. The regular use of it and/or over dosing of it can and has caused many to become toxic from it. Eventually causing major health issues and even death. One of the many side affects including destroying the kidneys is "neuropsychiatric events" which include  autism, dementia, depression, schizophrenia, multiple sclerosis, Alzheimer’s and Parkinson’s diseases, and similar others. Also the danger of the following.  (let me some this up, most if not all behavioral issues I and many have asked about are among those "events that can occur)
"● Nephrotoxicity: PEG has been connected to nephrotoxicity, a euphemism for kidney damage and it is counter-indicated for patients with kidney disease. This particular “side effect” is most likely related to the hydrolyzed (separated in water solution) molecules of ethylene glycol.

● Urticaria: PEG may  cause allergy-related hives (urticaria) — raised red welts on the surface of the skin. Children are particularly susceptible to hives, and face a grave risk of anaphylaxis — a life-threatening allergic reaction that may develop within minutes or even seconds after ingesting a PEG-containing laxative. Links between PEG and urticaria have been documented as far back as 1991.

● Esophageal perforations: Also known as Mallory-Weiss tear, esophageal perforations associated with polyethylene glycol electrolyte lavage solution have been reported as far back as 1991. These tears and related bleedings may occur in the mucus membrane of the lower part of the esophagus, or upper part of the stomach . "
Research has also shown the FDA is aware of this BUT has decided not to address it at this time. Do you're own research and form your own opinion, but as for me, my son is done with this stuff.
I post this because I have been through a literal hell with my son sliding further away into bad behavioral issues which has imprisoned him and me now for a 5 years (Now 23) with NO answers from Doctors. except to dope him up.
This with a boy, now 23 who was previously the light of any room he entered.
I post this because I want others to know what I have found and if you have these problems and your child uses this poison (which is a form of ethylene glycol, which is anti-freeze) then you may want to look into this and discontinue and found something safe and natural. I trusted Drs that this was safe, but should have known better.
I also post this because I know that constipation is a regular issue with many down's children (especially considering many having dealt with Hirschprungs disease) and this is the drug of choice to deal with it.
So maybe this will be a help to someone.

[fb261270]

Reading your post made me think of my situation. My daughter just turned 15 and she is having behavioural problems especially after she started a new class in school. I think any kind of change makes them act out, more so because they are not able to express it verbally. She has hearing aids in both ears and wax builds up quickly so most of the time she's not hearing well. You are right, they need consistency and more care. I don't think its a good idea to give medication unless you are sure about the ADHD. Why don't you try other schools? Or consult a behaviour therapist?
We are looking for a psychologist, but they are so expensive....

[Skic]

Unfortunately, in my experience, the Drs have NO answers. And to be honest with you I have doubts as to whether they really want to put the time into. Down's people, like others with disabilities are not high profit. But also it seems even those who are "more profitable", their only answer to anything these days is to drug you. What gets me is they do this with no scientific evidence that these drugs will work and not to mention the long list of health dangers involved. I have experienced a similar situation with my son, although not as bad as yours and no seizures, thank the Lord. I would suggest dietary measures, such as eliminating GMO's, BPA, any of those frutroses (RE: high frutrose corn syrup), major reduction in sugar, less meat and more vegetables, fruits. And in Vegetables, fruit, more raw than cooked. Maybe look into a high quality colon cleanse.There is also other detox's that can be helpful such as a heavy metal cleanse using a good grade Chlorella. I suggest Dr. Mercola's sight and he has good quality for fair pricing. You'd be amazed at what this may accomplish. BUT if anything try these 2 things. 1) Coconut Oil- a teaspoon 3 or 4 times a day. Has been found to reverse alzheimers symptoms. Not saying it has anything to do with that, but point is, it aids brain function. I have found it to be helpful with my son, and it has many other health benefits also. 2) Get an herb (and suggest Dr. Mercola) called Ashwangandha. Also found to be very effective for brain function and I have also seen improvement with my son.
But if he is on meds, check about any side effects of any of this with the drugs he may be on. My hope is he'd be able to come off any meds. You and he will be better off. But if he does he'll most likely have to be weaned off.
You'd be surprised at how these things may make a difference. And it's all safe and what the heck, you have nothing to lose to try. Have lot of other thoughts. Let me know if I can share anything else with you. Not an expert, but my trial started about 5 years ago and I have exhausted the medical community and only results I have gotten have been in this area. At the very least, he will be a healthy man.