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keratoconus

would like to find other parents dealing with keratonconus with down sh=yndrome
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I have a daughter with Down's who is 30 and has keratoconus in both eyes and cataracts in both eyes also.    She's had it for about 4 years now.   It is so hard for me because although she is very verbal she doesn't say anything about her eye sight and it is hard to know how she can see things.   She sees an eye specialist every six months and he says nothing can be done right now except for contacts and that is just out of the question for her.   Anyone else going through this?    
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167426 tn?1254086235
Dr. Boxer Wachler is a leading expert on keratoconus treatment. He was the first in the United States to report the results of Intacs for keratoconus in 1999. Since then, he has performed many hundreds of procedures on patients from all over the world. He published the largest study to date on Intacs treatment for keratoconus. Due to his pioneering work, Intacs is now recognized as a treatment for keratoconus.

He is located in Bevery Hills Calif  My neice had her surgery done by him with great results.  It is a rare thing only about 1 in 2000.
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